Saturday, 18 October 2014

Be inspired - Julie Sheen - proud RMN (newly qualified)


I was having one of those mornings  when this e mail from the wonderful kind Julie Sheen - proud RMN (newly qualified) arrived and made the biggest difference to my mood and day 

I had the great privilege to meet Julie a last month at a student led conference at Teesside University 
 Julie's passion and enthusiasm made my heart smile 







As I left that day Julie said she would be sharing ' make a difference ' as part of a talk she had soon
You can read the amazing story below 


Thank you Julie for the kindness ,your story and for making a difference 

Julie Sheen - proud RMN (newly qualified).





 On 25th September 2014 I was asked to deliver a motivational speech to 280 new nursing students at The University of Chester as part of their induction week and was daunted to be met with the sight of 280 expectant faces looking back at me. 

 I was asked to tell them about my journey from depression to Downing Street, as I had been cared for in my past as a patient and now, as I won Nursing Standard Student Nurse of the Year and Student Nursing Times Care maker of the year, I was soon  to visit 10 Downing Street at The invitation of the Prime Minister.

  I was also encouraged to explain the yearlong-campaign  I ran in partnership with my lecturer and the students union which was aimed at improving the mental wellbeing of students. 

I wanted to explain what I had achieved and encourage their broader involvement with their University which would not only supplement their training, but would also develop them as people, which I feel would make them more effective practitioners of the future.

  As I began to think about that I began to  realise that it was not about encouraging them to do things so that they can receive shiny trophies, but very nice they are, however to inspire them to make a difference to others. 

Therefore after outlining the above I spoke about three people who had inspired me recently: my lecturer Julie Dulson (the kind of nurse I aspire to be), Becky Lees who was the vice president of Chester Students Union and now student engagement officer (my critical friend and who encouraged me as a mature student with more ‘labels’ than you could imagine) and finally but certainly not last Tommy Whitelaw.  I explained how Tommy was doing possibly a bigger and more important of a tour than John Bishop this year!  After explaining how Tommy raises the extremely thought provoking issues re the day to day issues faced by carers of people who are experiencing dementia, I highlighted that every single student nurse will be part of someone’s dementia journey and the difference they can make to that journey. 

 I then asked them to do something inspirational right there andthen, which was to make their own quick pledge to carers, asking for even just one word even.  I asked them to then hold up their pledges together and was delighted that now rather than the frightening hall full of faces I now saw a wonderful sight of pledges.  This made me now inspired to make my own new pledge: “I pledge to turn the ‘sea’ of countless faces of healthcare from something daunting for carers to something supportive and caring”.

Having now typed up all of the 155 pledges I received back that day it stood out to be how many times the words ‘listen’ ‘care’ and ‘smile’ were repeated, if we all just followed those three words, I am sure we can Make a Difference.



Julie Sheen - proud RMN (newly qualified).

1. Listen and communicate compassion
2. Help
3. Help People smile and laugh
4. Listen
5. Give them more support and listen to them to promote good care
6. To help people with dementia and carers by educating people who don’t know or fully understand; to bring awareness
7. Help raise awareness
8. To listen more and have more awareness of dementia
9. Be compassionate for good care and support everyone equally
10. Listen
11. Support
12. Support and stability so that they are not alone
13. Listen
14. More support for those who are carers of people with dementia at home
15. I will listen to them
16. Raise awareness 
17. Reassurance
18. Care and support
19. To always listen and to be a figure of support for anybody, from any walk of life, who is a carer for somebody with dementia
20. Care
21. Patience
22. Consider THEIR views
23. Be there
24. Show patience
25. Empower and thank them
26. Support
27. Listen
28. Make a difference
29. Raise awareness
30. Listen
31. Listen and support
32. Listen and smile
33. Give them someone to talk to
34. Understand
35. Raise awareness for the carers
36. Be there
37. Listen to them for advice
38. I will help other care workers to understand dementia
39. Listen
40. Raise awareness
41. Be patient
42. Listen
43. I will smile
44. I will support and learn to understand
45. Advocate or give them a voice
46. Listen
47. I will care and show compassion to all service users and carers affected by dementia
48. Listen
49. Raise awareness
50. Listen to them
51. Care
52. Make them aware of the help available 
53. Talk to them
54. Learn
55. Just listen
56. Give them time and spend quality time with them
57. Give them a voice
58. Fight for them and support them
59. Give them TLC and support
60. Put in passion and the 6Cs
61. Spend more time assisting carers for people with dementia.  Become a dementia friend to widen my knowledge of dementia so that I can be more understanding of the condition
62. I will always take their needs in to account
63. Have empathy and encourage.  Sit with them and listen.
64. Listen and support
65. Be a dementia friend
66. Learn and care
67. Give them a voice (a voice to make a change)
68. Listen
69. Learn
70. Give them a voice 
71. Friend
72. Listen to them
73. Become a dementia friend
74. Be nice
75. Listen and support
76. Shoulder to cry on
77. Give them power to change a life
78. Make time to listen
79. Listen, talk, give time
80. I will become a dementia friend
81. Listen
82. Become a dementia friend
83. Talk about it and promote carers, make people aware of what carers do
84. Love
85. Try to raise awareness
86. I will listen
87. Dignity (let them keep it) we are ALL human
88. Don’t be ageist
89. Treat them how you would like to be treat yourself
90. Support and care
91. Listen
92. Help them and make them smile
93. Smile and care
94. Listen
95. Fight 
96. Listen
97. Support
98. Love and listen
99. Listen
100. Support
101. Be more understanding
102. More time, support and praise
103. Make time for them
104. Be polite and understanding
105. Compassionate
106. Show some understanding
107. Increase awareness
108. Protect and reassure
109. Take time to listen and understand
110. Be compassionate
111. Help it to be well known around the world to get better support and more people to listen for better quality of care
112. Use courage
113. Understand and empathise
114. To listen, to help, to support, to be there if needed
115. I will listen and show compassion
116. Support
117. Have more patience and promote their independence in their job
118. Pray
119. More support so they have a voice
120. More support
121. Respect
122. Learn
123. Promote support
124. Patience
125. Care
126. Gain more understanding
127. Support
128. Listen 
129. Support
130. Smile
131. Understand
132. Patience
133. Listen
134. To listen and advocate
135. Listen
136. To be there. To have a friend and to listen, put in place what they need
137. Care
138. Listen
139. Smile
140. Listen
141. Talk to them
142. Provide care with empathy and understanding
143. Listen
144. Be friendly and helpful
145. Be friendly with them and make them smile
146. Listen
147. Courage
148. Listen
149. Learn
150. Help
151. Care
152. Listen and understand
153. Care
154. Learn
155. Listen



Nov 10th - 3rd anniversary of taking The life stories to Parliament -what to do next -


November 10th will be 3 years to the day since I took the  letters ,life and love stories to parliament 
January will be the 4th anniversary of starting a campaign as a son from my bedroom whilst caring for my mum

It has been the most amazing journey full of struggles,Joy,hopes ,dreams and meeting the most incredible people, some I have cried with some I have smiled with and so many will be my friends forever 

All through  this journey, the greatest joy was my mum and the greatest heartbreak was dementia taking its toll on mum and me by her side 

The lonliness we faced was only a rehearsal for how lonely I feel now without mum by my side 

No matter what mum faced a squeeze of my hand ,a smile from mums eyes got me through the days when I felt so lost and Helpless and I miss my mum so 

I have tried every day to keep the promise I made to mum to the people who shared thier love stories to the incredible people I have been so privileged to meet to bring more understanding on dementia and caring 

Now it's time for reflection,maybe it's time to stop I have given hundreds of talks been to so many meetings ,so many highs and so many lows 

My tour this year finishes December 16th after which I will have to take a long hard think about life and what to do next 

Did  it matter ,I hope so ,it certainly mattered to me 

Thank you for the support ,kindness ,friendship,thank you for helping with my broken heart 

Thank you for caring 

Thank you from a son 

Tommy 



Friday, 17 October 2014

Video Conferencing event– Stronger Voices: Connecting Communities AM


Video Conferencing event– Stronger Voices: Connecting Communities AM

Video Conferencing event– Stronger Voices: Connecting Communities AM

When:
23/10/2014 at 11:00am

Morning Session 11am - 1pm

Venues, North Lanarkshire, Dumfries and Galloway and the Western Isles
The ALLIANCE networking event on 23 October will connect different areas of Scotland to ensure that our member’s voices have a key role in driving the future shape of health and social care services nationally and locally.
On 4 June 2014 the Cabinet Secretary for Health and Wellbeing, Alex Neil MSP, announced > that:
"we must do more to listen to, and promote, the voices of those we care for. We need the voices of our patients, those receiving care and their families, to be heard in a much clearer and stronger way"
The Scottish Government's ambition is to ensure that our services are co-produced with the communities they serve, build on people's assets and support the health and wellbeing of the whole person and their family.
The Stronger Voice > project is overseen by a Project Team which includes representatives from the Scottish Government >, the Scottish Health Council, Healthcare Improvement Scotland >, The ALLIANCE and COSLA >  The way we will do this will be led by a range of activities including:
  • research and scoping of existing participation models across the public sector and internationally
  • engagement events with stakeholders around Scotland
  • smaller local focus group style meetings with patient and community groups and members of the public, and
  • social media and internet approaches, utilising modern technology for gathering views.
Reasonable travel expenses will be reimbursed for people living withg long term conditions by the ALLIANCE or Scottish Health Council, these must be agreed in advance.
We would like to invite you to a session to help shape our proposal. We will be connecting members from various locations including:
Scottish Spina Bifida Association
6 Craighalbert Way, Cumbernauld
North Lanarkshire G68 0LS
Dumfries and Galloway
Cree North
Crichton Hall
Dumfries
DG1 4TG
Western Isles                  
CNES offices Balivanich
Benbecula

Shetland, venue tbc
Please find the agenda for the event here:  http://bit.ly/1z46xO0 >
Email to sign up stating what venue you would prefer.  Spaces are limited event@alliance-scotland.org.uk
For more information, please contact:
Justine Duncan on 0141 404 0231 or email event@alliance-scotland.org.uk

Video Conferencing event– Stronger Voices: Connecting Communities PM

When:
23/10/2014 at 02:00pm

Afternoon session 2pm - 4pm

Venues in North Lanarkshire, Aberdeen, Inverness and Argyll and Bute 
The ALLIANCE networking event on 23 October will connect different areas of Scotland to ensure that our member’s voices have a key role in driving the future shape of health and social care services nationally and locally.
On 4 June 2014 the Cabinet Secretary for Health and Wellbeing, Alex Neil MSP, announced > that:
"we must do more to listen to, and promote, the voices of those we care for. We need the voices of our patients, those receiving care and their families, to be heard in a much clearer and stronger way"
The Scottish Government's ambition is to ensure that our services are co-produced with the communities they serve, build on people's assets and support the health and wellbeing of the whole person and their family.
The Stronger Voice > project is overseen by a Project Team which includes representatives from the Scottish Government >, the Scottish Health Council, Healthcare Improvement Scotland >, The ALLIANCE and COSLA >  The way we will do this will be led by a range of activities including:
  • research and scoping of existing participation models across the public sector and internationally
  • engagement events with stakeholders around Scotland
  • smaller local focus group style meetings with patient and community groups and members of the public, and
  • social media and internet approaches, utilising modern technology for gathering views.
Reasonable travel expenses will be reimbursed for people living withg long term conditions by the ALLIANCE or Scottish Health Council, these must be agreed in advance.
We would like to invite you to a session to help shape our proposal.  We will be connecting members from various locations including:
North Lanarkshire - Scottish Spina Bifida Association
6 Craighalbert Way, Cumbernauld
North Lanarkshire G68 0LS
Aberdeen
3rd Floor East Wing Meeting Room
Ashgrove House
Foresterhill Health Campus
Aberdeen
Inverness
County Community Hospital
Saltburn Road
Invergordon
Ross & Cromarty
IV18 OJR
Argyll and Bute
Highlands and Islands Enterprise
The Enterprise Centre
Kilmory Industrial Estate
Lochgilphead
PA31 8SH

Please find the agenda for the event here:  http://www.alliance-scotland.org.uk/download/library/lib_5437fd73620ad/
Spaces at these events are limited, please email event@alliance-scotland.org.uk to sign up.
For more information, please contact:
Justine Duncan on 0141 404 0231 or email event@alliance-scotland.org.uk
Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Thursday, 16 October 2014

Inspiring day at Abertay the people the pledges the AHP Tree

Hi 
I have just returned home from a wonderful day at Abertay University meeting with  and speaking to Ist year Mental Health students a big thank you to  Emma Lamont Lecturer SHS Division of Nursing & Counselling University of Abertay Dundee and Robin Marki a fellow lecturer for the kind invite 

I  was a guest A guest speaker for Robin a few months back to 3rd year students you can read all about that day and the pledges at the link here 
The day got of to the most wonderful start,finally meeting in Person Shelagh Creegan AHP lead from NHS Tayside ,Starting of the day with a smile in your heart is exactly the start I had 
Sheelagh brought along to show me the NHS Tayside AHP living tree already with pledge made and some fulfilled i am so excited and honoured  to be part of the pledge tree journey as we add pledges from AHPs across Tayside 

Next up Emma introduced me to the 1st year mental health students with support from both Emma and Shelagh we had a two hour talk the first was speaking about caring for my mum and the letters I receive followed by a short break then discussion about the talk  and key areas such as 'Getting To Know Me' and 'The 5 Key Must Do Areas' initiative from Person Centred Scotland 
I have been overwhelmed and inspired by the kindness and passion I witnessed yesterday from Emma ,Shelagh and the wonderful students 
I travelled back to Glasgow with a smile in my heart and thoughts of a wonderful day 
you can read all the pledges from today on our Dementia Carer Voices pledge site this monday along with hopes for Sheelagh's  living tree and pledge wall Emmas plans at the University
Thank you for the kindness one and all  
tommy   
 
Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Monday, 13 October 2014

Alex Neil Cabinet Secretary for Health and Wellbeing pledges to make a difference

Hi 

with great thanks to Alex Neil for his pledge and ongoing interest in our Dementia Carer Voices project 

I am very honoured to have the opportunity to meet with and report to the Cabinet Secretary  
twice a year 


Thank you for the pledge taken from a short film we shall be launching soon on the make a difference tour 


Alex Neil Cabinet Secretary for Health and Wellbeing pledges to make a difference  
 

My pledge is to speed up the support and facilities for people with dementia in Scotland. 

I am very, very committed to the dementia agenda.

My late father himself suffered from Alzheimers, so I’m very aware of the challenges that people with dementia and their carers and families have.

And while we are making enormous strides in Scotland, I want to do more, much more to help people with dementia and their carers and families and friends.

It’s more than awareness-raising, because I think involving people with dementia and their carers in decisions about what they need is absolutely crucial – and I think that is a unique situation in Scotland. In fact, I was interviewed by Japanese television on this very point and I believe people in Japan and many other countries will want to follow the experience of Scotland and include people with dementia in policy-making, precisely so that their views are part and parcel of what actually happens in terms of public support and development of facilities for people with dementia in Scotland.




Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Friday, 10 October 2014

Guest Blog - Natalie Deacon, Engagement and Support Officer for Scotland with Patient Opinion

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It is with great pleasure that this weeks Guest Blog is from Natalie Deacon, Engagement and Support Officer for Scotland with Patient Opinion.  We would like to thank Natalie and the team for their great support to Dementia Carer Voices over the last year.  Patient Opinion were one of our 12 exhibitor stands at the Celtic Connections Concert for Caring in January of this year.  Let`s see what Natalie has to say……

It is such an honour to be asked to write a blog for Dementia Carers Voices.

I have worked for Patient Opinion for over a year now as Engagement and Support officer. One of the first organisations I met at the Alliance was Dementia Carers Voices.  I have followed the great work Tommy and his team do over the last year and I have really enjoyed working with everyone.

Patient Opinion have similar aims? to Dementia Carers Voices – we simply want people’s voices to be heard!

Patient Opinion is an independent, not-for-profit organisation and we run a website where people can share their experiences of health services, good and bad.  We use the power of the internet to carry the voices of patients and carers to the right bits of the health service to help them improve what they do.

In January Tommy invited us to the “Letters Life and Love Stories – A Celebration of Caring in Scotland” concert which formed part of the Celtic Connections calendar of 2014.  We invited Fife Young Carers as our special guests.  The concert was amazing and paid tribute to Scotland’s carers and the part played by the many professionals and volunteers who contribute to and support the carer journey.

We were delighted to be part of such a heart-warming celebration run by the Health and Social Care Alliance and Dementia Carers Voices.

We shared stories from carers and the responses they got from health services at our Celtic Connections stand.

fycimage

Fife Young Carers

Our guests on the night, Fife Young Carers, supports children and young people aged between 8 and 18 years whose lives are affected by caring for a family member, who is ill or disabled.  Young Carers are offered a range of opportunities to improve their social skills and self–esteem at fortnightly support group meetings to day trips and residentials.

Recently we’ve started working together with Fife Young Carers to help give young carers a voice about their experiences using health care services.  We attended the Scottish Young Carers Festival in July.  Patient Opinion had a “Tell your story” stand and, with the help of volunteers from Fife Young Carers, we collected lots of stories from young carers from across Scotland. If you would like to read these stories please click here.

mecarer1

Natalie engaging with carers

Speaking to young carers reminded us of how hard their lives can be.  A normal day of waking up and going to school for your average child can be such an effort for a young carer.  Some carers told us they have to care for a family member before they can even think about stepping out of the door.  This could mean they are late for school or don’t even have time to wash.

When discussing with Young Carers the barriers they faced and how to overcome these in terms of using healthcare services.  They told us by simply just talking, listening and making a carer feel part of the patient’s care, can make such a difference in how the patient and carer feel about their care.  These simple changes can take the anxiety out of a situation and have a much more positive impact on their experience.

We hope to continue working to help young carers and carers across Scotland share their health care experiences in the future to get their voices heard.

If you would like to share your experience today please share your story here.

Thank you Tommy and the Dementia Carers voices team for giving Patient Opinion such a lovely opportunity to write a blog today. We are reminiscing at Patient Opinion about how great the Carers concert was, thanks for inviting us :)

tommy

Tommy and Natalie

fycimage

Fife Young Carers

Our guests on the night, Fife Young Carers, supports children and young people aged between 8 and 18 years whose lives are affected by caring for a family member, who is ill or disabled.  Young Carers are offered a range of opportunities to improve their social skills and self–esteem at fortnightly support group meetings to day trips and residentials.

Recently we’ve started working together with Fife Young Carers to help give young carers a voice about their experiences using health care services.  We attended the Scottish Young Carers Festival in July.  Patient Opinion had a “Tell your story” stand and, with the help of volunteers from Fife Young Carers, we collected lots of stories from young carers from across Scotland. If you would like to read these stories please click here.

mecarer1

Natalie engaging with carers

Speaking to young carers reminded us of how hard their lives can be.  A normal day of waking up and going to school for your average child can be such an effort for a young carer.  Some carers told us they have to care for a family member before they can even think about stepping out of the door.  This could mean they are late for school or don’t even have time to wash.

When discussing with Young Carers the barriers they faced and how to overcome these in terms of using healthcare services.  They told us by simply just talking, listening and making a carer feel part of the patient’s care, can make such a difference in how the patient and carer feel about their care.  These simple changes can take the anxiety out of a situation and have a much more positive impact on their experience.

We hope to continue working to help young carers and carers across Scotland share their health care experiences in the future to get their voices heard.

If you would like to share your experience today please share your story here.

Thank you Tommy and the Dementia Carers voices team for giving Patient Opinion such a lovely opportunity to write a blog today. We are reminiscing at Patient Opinion about how great the Carers concert was, thanks for inviting us :)

tommy

Tommy and Natalie

Once again Tommy, Laura, Irene and Sarah would like to thank Patient Opinion for their continued support to our project here at the ALLIANCE.

If you would like to write a guest blog like Natalie then please get in touch via makeadifference@alliance-scotland.org.uk

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “ No – one ever asked   ” highlighted the transformational impact that ...