Friday, 18 May 2018

Dementia Carer Voices May 2018 Newsletter


We Want to Keep You

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Welcome to Dementia Carer Voice’s May Newsletter

My name is Matthew and I’ve just finished my fourth month working as the new Policy and Information Assistant on the Dementia Carer Voices team at the ALLIANCE.

It has been a really busy few months for Team DCV but I’m really enjoying my work here so far. I have seen first-hand the impact our project has and the difference it is making in people’s lives.

My job is to support the work of the Dementia Carer Voices project by writing content for the website, conducting background research and engaging with partners across the health and social care sector.

You can read all about the work we have done in the first few months of the year below. We hope you find it interesting!

Poetry Project

We are currently working on a project with the University of Glasgow to collect poetry from people living with Dementia, their carers and loved ones. ALLIANCE Director Irene Oldfather and UK Lead Tommy Whitelaw previously worked together in partnership with Jane and Diane collecting letters from carers.

We are proud to be able to work with Jane Joy (Nursing & Health Care Lecturer at the University of Glasgow) and Dr Diane Willis (Senior Lecturer at Edinburgh Napier University) again on this exciting project. To date, we have received 56 poems. Each of them provides a unique and incredibly moving depiction of life with dementia.

It is the intention of Diane and Jane to examine the poems from this time up to the present day and share their content for educational and publication purposes. This will help to inform carers and health providers on the needs of individuals living and caring for people with dementia.

Share Your Opinion

Would you like to share your experience of living with dementia, caring for a loved one or working in health and social care? Or do you work within an organisation or project that aims to support people who are living with dementia, caring for a loved one or working in health and social care?

The Dementia Carer Voices team would love to give you a chance to share your opinion on the ALLIANCE website! We have a huge outreach and offer a great platform for people who are looking to share their thoughts, feelings and ideas.

We have hosted opinion pieces from Kate Swaffer, the East Renfrewshire Prevention team, Lingo Flamingo, the Care Inspectorate and Carers Scotland in the past. However, we are not exclusively seeking opinions from organisations. We are also interested in promoting the voice of lived experience.

Our pieces are usually 600 words at the very most. If you’re interested, please also send us a copy of your organisation’s logo (if applicable) and a photo of the author which we can upload to accompany the text.

To submit a guest opinion, or for more information, feel free to email us at dementiacarervoices@alliance-scotland.org.uk
Our Recent Opinion Pieces

‘What Matters to You Day?’ Day 2018

‘What Matters to You?’ Day 2018 is coming up on the 6 June. ‘What Matters to You?’ Day aims to encourage and support more meaningful conversations between people who provide health and social care and the people, families and carers who receive health and social care.

You can find out more about the day on their website.

Tommy recently wrote an opinion piece for our website stressing the importance of the five ‘Must Do With Me’ steps. You can watch him speak about this on our YouTube channel.

Last year, we recorded podcasts and we are keen to support more conversations and case studies this year. If you’re interested in getting involved email us at dementiacarervoices@alliance-scotland.org.uk
Tommy's WMTY Day Opinion Piece

Annual Conference

The ALLIANCE’s Annual Conference is coming up on the 4 June at the Radisson Blu Hotel in Glasgow.

Action: The 2nd Health and Social Care Integration Event will offer opportunities for people and organisations to take part in meaningful, open and honest discussion. By sharing stories and showcasing initiatives that are helping to improve people’s lives, the ALLIANCE’s 2018 annual conference will provide an important contribution to the debate around health and social care in Scotland.

The 2018 event will focus on Action and will showcase people and organisations working on innovative, engaging and co-produced projects that aim to improve outcomes for people who access and deliver support and services in Scotland.

You can visit our website for a full list of speakers and workshops. If you are interested in attending, you can register here.
Register for the ALLIANCE Annual Conference
Further News

You Can Make a Difference Campaign

We are excited to announce that we have now received our 18,000th pledge to make a difference! Our You Can Make a Difference campaign has now reached over 120,000 people across more than 700 talks and have met so many remarkable people so far.

These 18,000 pledges are from a personal perspective so each of them is unique and from the heart. 18,000 people have stopped and reflected on what they can do in their lives to make a difference. And no matter what your role, everyone has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways.

You can read all of the pledges we have received so far on our website, as well as our pledge case studies, most recent publication and 5 Steps to Change resource.
Our Pledges

Activities for People Living with Dementia

You can have a look at the News Section of our website to keep track of dementia friendly events and activities that are coming up in 2018. The Social Programme has announced six months of free activities for anyone affected by dementia, whilst Glasgow Movie Memories has recently announced the next three months of film screenings as a part of their ongoing initiative.
Free Activiities for Anyone Living with Dementia

The Scottish Ambulance Service

Our ALLIANCE Director Irene Oldfather has recently been appointed to the Board of the Scottish Ambulance Service. Irene commented that ‘it is a great honour to have been invited to sit on the Board. I’m looking forward to working to make a difference.’
Scottish Ambulance Service

Resources

You can find a range of resources that are useful for people living with dementia on the Support and Information Page of our website. For example, NHS Health Scotland, in partnership with Alzheimer Scotland, have recently published a range of free resources to support people with dementia, their carers and people working in the field.
Resources

Dementia Carer Voices

Visit us online
Follow us on:

Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Tuesday, 15 May 2018

Celebrating People, Places and 18,000 Pledges to Make a Difference

Celebrating People, Places and 18,000 Pledges to Make a Difference


                         

The Dementia Carer Voices team would like to say a huge thank you to everyone who has made a pledge, and everyone we have met along the way so far on our You Can Make a Difference campaign. We are absolutely delighted to have now received 18,000 pledges!


This is a wonderful milestone to reach and would not be possible without the commitment and passion of everyone who attends our talks, reads about our campaign and pledges to make a difference to the lives of people with dementia and their carers. We have reached over 120,000 people across more than 700 talks and have met so many remarkable people so far.
These 18,000 pledges are from a personal perspective so each of them is unique and from the heart. 18,000 people have stopped and reflected on what they can do in their lives to make a difference. And no matter what your role, everyone has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways.
We are really proud to be able to work with the Chief Nursing Officer for Scotland Professor Fiona McQueen (this link will take you away from our website), and the Chief Nursing Officer for England Professor Jane Cummings (this link will take you away from our website), sharing key messages from both and feeding back on the aims and outcomes of the people we have met.
You can read all of the pledges we have received so far on our website, as well as our pledge case studies, most recent publication and 5 Steps to Change resource.
The campaign will continue throughout the year. If you have been inspired to make a pledge yourself, you can email us at dementiacarervoices@alliance-scotland.org.uk We’d love to hear how you plan to make a difference!
Commenting on this huge milestone, our UK Lead Tommy Whitelaw said that

‘it has been a remarkable experience meeting so many inspirational people who do so many incredible things. We are inspired by the pledges and how people have been turning their good intentions into purposeful action.”
ALLIANCE Director Irene Oldfather added that

“these 18,000 pledges demonstrate Dementia Carer Voice’s ability to create a social movement for change by raising knowledge, understanding and awareness of living with dementia whilst promoting person-centred rights-based care to enhance the lives of people living with dementia.”
read less

Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Monday, 14 May 2018

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “No – one ever asked >” highlighted the transformational impact that listening, kindness and understanding made to his journey as a carer, and the importance of looking beyond a person’s diagnosis to engage with them as an individual.

If you would like to access further information about the Collaborative and to view presentations from the latest learning session, please click here.


In 2011 Tommy produced a short film in conjunction with Alzheimer Scotland. The video, which was later shown at the Scottish Parliament, includes families and carers reading from the letters they sent him during his dementia awareness tour of Scotland’s towns and cities. To view the FILM http://tv.enterprisescreen.co.uk/watch?v=347



 Putting the Care into Dementia Care

This training film is a collaboration between Health watch Essex, staff at Broomfield Hospital and Dementia Carer Voices







Interview for NHS Greater Glasgow and Clyde

 Patients’ Stories Library

The NHS Greater Glasgow & Clyde's Patients' Stories Library for Hospital Staff aims to use patients’ and carers’ experiences to look at how acute services can be improved.
Tommy shared his story with frontline staff working across NHS Greater Glasgow and Clyde, including the Ward staff that cared for his mother at the Southern General hospital. His film interview was also shown across a number of NHSGGC hospital sites during Carers Week 2013 to help raise awareness amongst staff about the importance of supporting carers in contributing to delivering person centred care. http://www.youtube.com/watch?v=36_Y_3y0yXM

Dementia Carer Voices where proud to tour with Healthwatch across Essex back in October 2015.  You can view the blog post and pledges from the few days here. 
Thanks to every one of you who attended each event and the @HWEssex team for arranging the few days.  Below is a new film about the tour with some of the Nurses who attended sharing their pledges made to the Make a Difference Campaign each day. 
HWlarge




 It’s Ok to Ask for Help!

The It’s Ok to Ask DVD produced by NHS Greater Glasgow & Clyde, Glasgow City Council, The Alliance and Alzheimer Scotland uses carers’ experiences to highlight the benefits of using carer support services in Glasgow, and encourages people to ask for help. Tommy Whitelaw, Alliance Scotland, shares experiences of looking after a partner, parent, relative, friend or neighbour with dementia. Other carers tell us about help they get from support services in Glasgow. FILM http://youtu.be/u2BAxSCcic0




'On the Couch' with Tommy Whitelaw filmed interview NHS Scotland Conference June 2015





Speaking Care Inspectorate Seminar 

Published on 7 Nov 2013
Tommy recently spoke to our inspection team to talk about his experiences of caring for his mum Joan Whitelaw, who died last year after living with dementia for several years. He spoke about the difficulties he had getting the right services for his mum at the right time and how this led him to take his dementia awareness campaign "On Tour"




















National Dementia Awareness Week 2014 (England) – NHS Employers Nursing Times - my Filmed interview

To mark National Dementia Awareness Week which runs from 18 to 24 May, NHS Employers the Nursing Times are working with the Alzheimer’s Society to promote resources available to NHS organisations and the NHS workforce.
As part of this activity, they have specially commissioned a short video of an interview with Dementia Carer Voices’ very own Tommy Whitelaw.

You can get more information here on NHS Employers 
This video was made to mark this year’s Dementia Awareness week 





You can click on the image Below to preview the  trailer for a longer film which will be launched on 12th December in NHS Ayrshire and Arran University Hospital Ayr lecture theatre.
make a difference film

Full version of Make a difference with the staff nhsaaa 
Nicola Film Still 2



Dementia Carer Voices May 2018 Newsletter

Dementia Carer Voices May 2018 Newsletter We Want to Keep You GDPR comes into force on the 25 May. To keep receiving o...