Are you a carer?
Please watch my short film, which includes families and carers reading from the letters they sent me.
If you're a carer and you'd like to send a letter in, you can post it to Tommy on Tour, 39 crosslee street glasgow g521sl. You can also email it to firstname.lastname@example.org
Wednesday, 23 July 2014
Tuesday, 22 July 2014
And it was always forever, the changes where always forever. I knew they were forever, I had witnessed forever happening so many times before.
What are going to do to make forevers better for people living with dementia, for the families, for Carers?
If we are truly going to support families, be there for the forevers, as forevers can truly break your heart.
Sunday, 20 July 2014
For further information, please contact the project team on 0141 404 0233, or email;
Project Engagement Lead
Policy and Information Assistant
Additional information about the project is available at:
If you have experience of caring for someone with dementia you can contribute and have your say on your hopes and concerns for the future by visiting http://www.surveymonkey.com/s/V7SYL2G
Saturday, 19 July 2014
Dementia and caring brings many struggles and of course moments of joy, love and inspiration. My mum inspired me many times and amazingly at the most crucial moments when I was really struggling to cope and understand. That kind of sums it up, there is my wee mum facing all that dementia brought and over the last months nearing end of life, but always able to comfort her son and get him through it.
As a campaigner I am trying to raise awareness, understanding and empower people to help prevent families reaching crisis situations. All too often on our journey we were lost, lonely and isolated but looking back my heart can sometime smile and this is thanks to the kindness of the special people we dealt with.
Like the District Nurse who put her arm around me one day when I was in tears and said “You’re doing ok Tom you’re doing ok.” I can’t tell you how much I needed someone to do that as I was scared of what was happening and scared of letting my mum down.
Or the Nurse ( speach & Language therapist ) who was involved in the last months of my mums life when she could no longer swallow and had been in hospital for a few days. On her returning home I was struggling to get my mum to eat or take fluids and the nurse said call me if you have any problems, so I did and she took the time to pass by after work to sit down to show me again what to do, holding mum’s hand and putting us both at ease.
There is an important lesson here, its people who change lives through their help, kindness and understanding and it is important to celebrate this so that others can take notice and follow. A big part of my talks is celebrating the people who made our experience better, even if was just for a day. Then there are the amazing carers and families who I have met out and about or online on Twitter or Facebook who have shared their life stories and are the inspiration behind my campaign.
Over and above policies, strategies or reports it’s people who have the potential to transform people’s lives throughout what can be a very difficult and lonely journey. I still smile to think of the special people who helped me and the thousands out there helping others in the same manner, most of whom I have never met.
Friday, 18 July 2014
Speaking University of the West of Scotland Ayr Nursing / Mental Health Students 2 talks September 19th
Age Scotland / Health and Social Care ALLIANCE Scotland invite you to have your say on the National Care Standards
Social Attitudes in 21st Century Scotland event with Professor Curtice, Professor of Politics at the University of Strathclyde,
Thursday, 17 July 2014
The 'You Can Make a Difference' Campaign which was launched by Dementia Carer Voices in February of this year has now added new talks to the tour with NHS Ayrshire and Arran. The campaign
The pledges highlight the positive steps we can all take to make a difference for people affected by dementia through focusing on the person rather than the condition and taking time to listen to and focus on what is important to people with dementia and their carers.
Tommy Whitelaw, Dementia Carer Voices Project Engagement Lead said
“This is an important opportunity to spread the message that we can all make a difference in our own way. Carers so often tell us that a little bit of time, listening and understanding can make an unimaginable difference during what can be a very difficult and lonely journey.”
Irene Oldfather, Director, the ALLIANCE, said
“By harnessing the power of carers’ lived experiences, the “You Can Make a Difference” campaign speaks to the hearts of people and communities across Scotland, with the simple message that dementia is everyone's business and that you have the power to transform the experiences of people affected by the condition.”
These talks are open to all to attend. For further information, please email:
Thank you for taking the time to share this information with us, your contribution will enable us to capture key messages which will be used to influence future policy.
HOW THIS SURVEY WILL BE USED
The information we collect will primarily be used to inform our work priorities. We will not share any identifiable information with anyone out with our team but will report to the Scottish Government on the themes and the amalgamated information evidences.