Are you a carer?





Please watch my short film, which includes families and carers reading from the letters they sent me.






If you're a carer and you'd like to send a letter in, you can post it to Tommy on Tour, 39 crosslee street glasgow g521sl. You can also email it to tommy@i-woz-there.com

Tuesday, 23 September 2014

Friday Speaking Hertfordshire Patient Stories Conference





Hi

With great thanks to Catherine Pelley Deputy Director of Nursing and Quality (Patient Experience) Hertfordshire and South Midlands Area Team for the kind invite to speak at the Hertfordshire Patient Stories Conference 26th September being held at the Fielder Centre Conference Centre
Catherine and I both follow each other  on twitter and I am very honored to be invited to attend and speak  

Looking forward to meeting Catherine ,all the team and all who attend


Tommy  


Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Dementia Carer Voices Get Involved



Get Involved

Thank you very much for your interest in getting involved with the Dementia Carer Voices project. There are a number of ways you can do so, detailed below.

Survey survey

Dementia carer Voices has put together a short survey for people who have experience of caring for someone with dementia. The survey should not take long to complete, and will be open until Friday 31st October. You can contribute and have your say on your hopes and concerns for the future by visiting:

Make a pledge   pledge

The team have been encouraging people to make a pledge; a promise to make a difference in the lives of people with dementia, their families and their carers. Please email your pledge to makeadifference@alliance-scotland.org.uk

Tweet us!  twitter

Follow us on twitter and tell us your thoughts @DementiaCarerVo

Newsletter images

The Aug/Sept Dementia Carer Voices Newsletter is now out!
If you would like to receive our monthly newsletter, please subscribe to our mailing list by sending us an email here.

YouTube  untitled

Take a look at the Dementia Carer Voices YouTube channel and keep up to date with the latest films and interviews.

Events  calendar

Please find attached a list of upcoming talks for this year. If you would like to attend one of the talks, please get in touch using the contact form below.
        September
  • 19.09.14  University West of Scotland Ayr; 2 talks
  • 26.09.14  Hertfordshire University
      October
  • 01.10.14  Speaking Ailsa Hospital, Ayrshire
  • 03.10.14  End of Life Care Event, City Hospital Birmingham
  • 04.10.14  Portobello Book Festival
  • 7-9 10 14  DCV Exhibition stand at SG
  • 08.10.14  6Cs Live Conference in Birmingham NHS England
  • 10.10.14  Lanarkshire Acute Care for Older People
  • 14.10.14  Hope Café Lanarkshire
  • 20.10.14  Speaking at City Hospital Birmingham
  • 22.10.14  Speaking at Glasgow Caledonian University
  • 23.10.14  2 events – Social workers in Warrington
  • 27-30.10.14  NHS Highland Tour
  • 31.10.14  Citizens Advice Direct AGM
  • 31.10.14  HMFA Scotland Conference in Perth
       November
  • 03.11.14  Sunderland City Hospital – Planning for your future care conference
  • 12.11.14  Wolverhampton End of Life Care Conference
  • 13.11.14  NHS Western Isles Tour
  • 20.11.14  Derbyshire NHS Trust End of Life Conference
  • 26.11.14  Protected Learning Time GP Practices, Murrayfield
       December
  • 02.12.14  NHSGGC Learning Session
  • 05.12.14  Cohort13 Senior Charge Nurse Conference

Feedback

Have you attended one of the Make a Difference talks? Let us know what you think! We’ve gathered some of our latest feedback but would love to hear your thoughts on the project, the campaign or the talks. Please let us know by using the contact form below.
Feedback

Get in Touch

Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Monday, 22 September 2014

My mum I just miss you so -

I just miss my mum so much .I have been pottering around the house all morning as I do most weekends and evenings and ther is a feeling of great emptiness in this house and in my heart 

I don't miss dementia - dementia does not define my mum.My mum was magnificent kind and caring but there is no escape from all dementia brought to mums life and mine as a son to witness 

I miss both mum and Dad  ,over twenty years ago I started a life touring the world and making great times and great mistakes and even from a distance shared the great times with my parents.I am absolutely greatful for the support,advice and help they gave to the msitakes and struggles I personally faced along the way. I was a lucky boy to have such parents 

Never imagining that 20 years later my mum would be diagnosed with dementia and I would become  a carer.Now there is a description that's sits slightly uneasy .people keep saying " you cared for your mum " that is only half the story .even with all mum faced she always cared for her son.on the days we where both struggling on the days I was falli apart .on my knees and broken,this wonderful mum could make it all better with a squeeze of my hand or the love from her eyes 

That's what mums and dads do no matter what they face they make it better for their children ,no mater how young or old their children are ,no matter how far or close they May be 

And I miss that so much.I miss the support ,kindness that squeeze of the hand the love and care in mums eyes 

You took much away dementia but never the love and care a mother had for her children and for all she met and knew 

I just  miss you mum 


                                                   



                                                                 Sister 

                              



       

                                                             love - story

                                        



                                                            Love story 

                                              




                                                                         Mother -

            


                                                                     Friend 

                                            





                              


Sunday, 21 September 2014

Dementia Carer Voices Exhibition at the Scottish Parliament October 7th-9th


                                           


Hi 


Dementia Carer Voices will be putting on an exhibition at the Scottish Parliament from 7th-9th October. The exhibition will showcase the pledge campaign to date and track its progress across the country

We hope to speak to as many MSPs as possible to highlight the impact that each individual can make. The project team would very much appreciate it if our supporters could encourage their local MSP to come along to the event. Additionally if you would like to come along, please do ask your MSP to
sponsor you to come along for the day. 

With great thanks to Sandra White MSP for hosting this event for us 

Thank you for the pledges ,support and encouragement I hope if you have time you can come along and meet my team mates Irene , laura and Sarah 


                                           

The Health and Social Care ALLIANCE’s Dementia Carer Voices project is embarking on an exciting new campaign for 2014, calling upon Scotland’s Health and Social Care professionals to consider how they can assist people with dementia and their carers.


The team will be taking the You Can Make A Difference’ > campaign to staff across the country to highlight that no matter what their role, everyone working in Health and Social Care Services has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways. Staff will be given the opportunity to reflect on carer’s personal stories and make a pledge based on one key message or action that they will take away and apply to their everyday practice to make a difference. 


Some of the pledges received so far include;

“I pledge to listen with open ears and and open heart.

“I pledge to view the person I care for as all that they have been, they are and all that they can be.”

“I pledge to take the time to speak to the person’s family and provide support to make their lives as fulfilling as possible.”

Tommy Whitelaw, Dementia Carer Voices Project Engagement Lead, said: 
“Carers tell us that a little bit of time, listening and understanding can make an unimaginable difference during what can be a very difficult and lonely journey. In my case it was a district nurse who not only gave me practical advice about how to take care of my mum, but sat down, put her arm around me and told me ‘You’re doing all right. You can make that difference.”

Irene Oldfather, Director, the ALLIANCE said:
 “This work reaches out and touches the hearts of many people, not least Health and Social Care students and professionals. These interactions are an ideal opportunity for staff to pause and reflect on what is really important to the people in their care.  Make a pledge, make a difference.”

For more information on the campaign and to find out how you can submit your pledge, visit dementiacarervoices.wordpress.com >

Make A Difference Tour 2014  


·         20.01.14  Letters, Life and Love Stories Concert    
·         21.01.14  Spoke at Peace Hospice, Watford    
·         22.01.14  Spoke at 6C's Live Event, London  
·         27.01.14  Spoke at Heartlands Hospital, Birmingham  
·         28.01.14  Spoke at BCDA dignity event, Birmingham 
·         03.02.14  University of Edinburgh - Nursing Students 
·         04.02.14  Stow College - Health and Social Care Students   
·         05.02.14  St Andrew's Hospice - Airdrie  
·         06.02.14  Presentation to Crosshouse Hospital NHSaaa  
·         06.02.14  University of Abertay    
·         17.02.14  Royal College of Nursing  
·         18.02.14  8 Pillar Test Sites Learning Session 1  
·         19.02.14  NHS Fife - Dementia Champions  
·         20.02.14  University of Edinburgh - MSC Integrated Service Improvement  
·         24.02.14  NHS Highland Palliative Care Event 
·         25.02.14 NHS Grampian/ Robert Gordon University NHS Grampian - Presentation  to board and 4 talks at Aberdeen Royal Infirmary to medical students in ARI.
·         26.02.14  NHS Grampian / Robert Gordon University - Moray College Elgin and Acorn Centre Inverurie
·         27.02.14  NHS Grampian / Robert Gordon University – 4 talks to nursing students 
·         03.03.14  NHS England Expo Manchester
·         04.03.14   NHS England Expo Manchester
·         05.03.14  Inverary Talk - Caring Connections and the focus is on creating a person centred network in Argyll and Bute, across health, social care and third sector 
·         07.03.14  Queen Margaret University, Edinburgh  
·         11.03.14  Senior Charge Nurses event – Beardmore Conference Centre  
·         12.03.14  Monklands Hospital, Airdrie  
·         17.03.14  Reid Kerr Collage Nursing Students
·         17.03.14  NHSGGC Tour Western Infirmary 3rd Floor Function Suite 1-2pm and 2.30-3.30pm (2 talks)
·         18.03.14  NHSGGC Tour Inverclyde Royal IRH Education Centre Upstairs 1-2pm and 2.30-3.30pm (2 talks)
·         19.03.14  Year 1 addiction sessions - Glasgow Caledonian University  
·         20.03.14  NHSGGC Tour Royal Alexandria Hospital Medical Education Lecture Theatre 1-2pm and 2.30-3.30pm (2 talks)
·         21.03.14  Gartnavel General Hospital Lecture Theatre Post Graduate Centre 1-2pm and 2.30-3.30pm (2 talks)
·         24.03.14  NHSGGC Tour Western Infirmary 3rd Floor Function Suite 1-2pm and 2.30-3.30pm (2 talks)
·         26.03.14  Dementia Post-Diagnostic Support HEAT Target Event - Beardmore Conference Centre  
·         28.03.14  James Cook University Hospital, Middlesbrough  



·         31.03.14  NHSGGC Tour Royal Alexandria Hospital Lecture Theatre 2 1-2pm and 2.30-3.30pm (2 talks)   
·         01.04.14  NHSGGC Tour Gartnavel General Hospital Boardroom 1-2pm and 2.30-3.30pm (2 talks)   
·         02.04.14. NHSGGC Tour Western Infirmary 3rd Floor Function Suite 1-2pm and 2.30-3.30pm (2 talks)
·         03.04.14  OT forum East Renfrewshire (morning)
·         08.04.14  NHSD&G Tour - Waverly Medical Centre Open session x2 and Palmerston Football Club Closed Session (Invite only)
·         09.04.14 NHSD&G Tour - Conference Room Crichton Hall Open session x2 and Alzheimer Scotland Resource Centre, Gordon Street meet and greet with lunch.
·         10.04.14  NHSD&G Tour - Tribunal Room Midpark Hospital Open session, Conference room Crichton Hall Session with dementia champions and Howgill Centre, Treastaigh, Annan Open session
·         10.04.14 Masterclass Caledonian University
·         21.04.14 Maple Villa Livingston Dementia unit for challenging behaviours
·         22.04.14 speaking Sandywells NHSGG staff conference
·         24.04.14 Speaking opening of Dementia Friendly Kent
·         28.04.14  NHSGGC Tour Glasgow Royal Infirmary Boardroom 1-2pm and 2.30-3.30pm (2 talks)    
·         29.04.14. NHSGGC Tour Victoria Infirmary Practice Development Classroom 1-2pm and 2.30-3.30pm (2 talks) 
·         30.04.14. NHSGGC Tour Vale of Leven MR1 1-2pm and 2.30-3.30pm (2 talks)
·         01.05.14 Speaking Sunshine House Wigan
·         06.05.14 Hosting Webinar NHS England Leeds International Nurses week 
·         06.05.14  NHSGGC Tour  Glasgow Royal Infirmary Boardroom 1-2pm and 2.30-3.30pm (2 talks)    
·         07.05.14 Speaking Care Inspectorate Conference 
·         08.05.14 NHS Borders Dementia Awareness Event 
·         09.05.14  NHSAA Crosshouse Hospital
·         12.04.14 Carers Dementia Support Group Edinburgh
·         13.05.14 Unveiling plague at Heartlands Hospital Birmingham
·         14.05.14  Scottish Practice Nurse Association Conference – Perth
·         15.05.14  NHSAA Ayr Hospital
·         19.05.14  ALLIANCE Annual Conference – Pollock Halls Edinburgh
·         20.05.14  Speaking at University of Abertay
·         22.05.14  NHSAA Crosshouse Hospital
·         22.05.14  Ardeer Centre, Stevenson - Care at Home Frontline staff event
·         27.05.14  NHSAA Ayr Hospital
·         27.05.14  Person Centred Care Conference – Make a difference stand
·         28.05.14  Person Centred Care Conference – Make a difference stand
·         20.05.14  Speaking at Moray College – 8 pillars Launch
·         03.06.14  Speaking at County Hall – Irvine for North Ayrshire Council
·         03.06.14  NHS Annual Conference - attending


·         04.06.14  NHS Annual Conference – attending
·         05.06.14  Speaking at Voluntary Action South Ayrshire Conference
·         06.06.14  NHSGGC Podiatry Development Day
·         10.06.14  Speaking at SG dementia event
·         11.06.14  NHSAA Ayr Hospital 
·         12.06.14  Brooksby Medical Centre, Largs - North Ayrshire Council Staff and carers
·         13.06.14  Central Borders Conference
·         17.06.14  Speaking to Birmingham Social Workers Seminar
·         18.06.14  Sandwell and West Birmingham NHS Trust and Rowley Regis Hospital
·         18.06.14  Salford University – Nursing and Social Work Students
·         19.06.14 Meeting Cabinet Secretary for Health Parliament
·         19.06.14 NHSAA Crosshouse Hospital
·         20.06.14  Speaking at Southern General - NHSGGC
·         20.06.14  NHSAA Ayr Hospital 
·         25.06.14  Speaking at COSLA Event  - Link worker project
·         25.06.2014 Speaking at Care Inspectorate, Administration Staff
·         26.06.14  NHSAA Ayr Hospital
·         26.06.14  Speaking at Beardmore conference centre – Facing the future together
·         27.06.14  Speaking in Birmingham – Masterclass to Social care sector via BCDA
·         30.06.14  NHSAA Crosshouse Hospital


·         01.07.14  Attending Cuppa Club – Albany Centre
·         02.07.14  Dementia Café with Croy, Ayrshire
·         03.07.14  Speaking #BeGoodBeSocial Scotland's third sector social media gathering
·         08.07.14  North Wales Dementia Tweet-up Conference
·         09.07.14 Speaking Essex Lloyds launch  
·         15.07.14 Sunflower Dementia Gardens, Wrexham Hospital
·         23.07.14 Speaking at Carr Gomm Community Event Argyll and Bute
·         24.07.14 Person Centred Talks with Person Centred Greater Glasgow and Clyde
·         28.07.14 Cuppa Club, Glasgow
·         30.07.14 Dementia Conference Warrington Hospital


·         07.08.14 Speaking to Occupational Therapy Team South Ayrshire
·         11.08.14  Speaking Crosshouse Hospital NHSAA
·         12.08.14 Attending Promoting Excellence Board
·         15.07.14  Speaking at Ayr Hosptial NHSAA
·         20.08.14 Speaking at Quarriers Bridge of Weir Event
·         26.08.14 Speaking at North Ayrshire Council for Tony Fisher

·         27.08.14  Speaking at Drumchapel Hospital
·         29.08.14  Session for Social Media for Social Good in Glasgow


·         1.09.14 Speaking at Teeside University, Nursing students
·         08-12.09.14  NHS Highland Tour
·         16.09.14 Speaking Glasgow University, Nursing Students
·         17.09.14 Speaking at Warrick University
·         18.08.14  Speaking at Burton Hospital, Burton on Trent
·         19.09.14 University West of Scotland Ayr; 2 talks
·         26.09.14 Hertfordshire University


·         01.10.14 Speaking Ailsa Hospital, Ayrshire
·         03.10.14 End of Life Care Event, City Hospital Birmingham
·         04.10.14  Portobello Book Festival
·         7-9 10 14 DCV Exhibition stand at SG
·         08.10.14  6Cs Live Conference in Birmingham NHS England
·         14.10.14 Hope Café Lanarkshire
·         20.10.14 Speaking at City Hospital Birmingham
·         22.10.14 Speaking at Glasgow Caledonia University
·         31.10.14  Citizens Advice Direct AGM


·         03.11.14  Sunderland City Hospital - Planning for your future care conference
·         12.11.14 Wolverhampton End of Life Care Conference
·         26.11.14 Protected Learning Time GP Practices, Murrayfield

05.12.14  Cohort13 Senior Charge Nurse Conference




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