Sunday, 5 August 2018

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “No – one ever asked >” highlighted the transformational impact that listening, kindness and understanding made to his journey as a carer, and the importance of looking beyond a person’s diagnosis to engage with them as an individual.

If you would like to access further information about the Collaborative and to view presentations from the latest learning session, please click here.


In 2011 Tommy produced a short film in conjunction with Alzheimer Scotland. The video, which was later shown at the Scottish Parliament, includes families and carers reading from the letters they sent him during his dementia awareness tour of Scotland’s towns and cities. To view the FILM http://tv.enterprisescreen.co.uk/watch?v=347




 Putting the Care into Dementia Care

This training film is a collaboration between Health watch
 Essex,


staff at Broomfield Hospital and Dementia Carer Voices







Interview for NHS Greater Glasgow and Clyde

 Patients’ Stories Library

The NHS Greater Glasgow & Clyde's Patients' Stories Library for Hospital Staff aims to use patients’ and carers’ experiences to look at how acute services can be improved.
Tommy shared his story with frontline staff working across NHS Greater Glasgow and Clyde, including the Ward staff that cared for his mother at the Southern General hospital. His film interview was also shown across a number of NHSGGC hospital sites during Carers Week 2013 to help raise awareness amongst staff about the importance of supporting carers in contributing to delivering person centred care. http://www.youtube.com/watch?v=36_Y_3y0yXM


Dementia Carer Voices where proud to tour with Healthwatch across Essex back in October 2015.  You can view the blog post and pledges from the few days here. 
Thanks to every one of you who attended each event and the @HWEssex team for arranging the few days.  Below is a new film about the tour with some of the Nurses who attended sharing their pledges made to the Make a Difference Campaign each day. 

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 It’s Ok to Ask for Help!

The It’s Ok to Ask DVD produced by NHS Greater Glasgow & Clyde, Glasgow City Council, The Alliance and Alzheimer Scotland uses carers’ experiences to highlight the benefits of using carer support services in Glasgow, and encourages people to ask for help. Tommy Whitelaw, Alliance Scotland, shares experiences of looking after a partner, parent, relative, friend or neighbour with dementia. Other carers tell us about help they get from support services in Glasgow. FILM http://youtu.be/u2BAxSCcic0






'On the Couch' with Tommy Whitelaw filmed interview NHS Scotland Conference June 2015





Speaking Care Inspectorate Seminar 

Published on 7 Nov 2013
Tommy recently spoke to our inspection team to talk about his experiences of caring for his mum Joan Whitelaw, who died last year after living with dementia for several years. He spoke about the difficulties he had getting the right services for his mum at the right time and how this led him to take his dementia awareness campaign "On Tour"





















National Dementia Awareness Week 2014 (England) – NHS Employers Nursing Times - my Filmed interview

To mark National Dementia Awareness Week which runs from 18 to 24 May, NHS Employers the Nursing Times are working with the Alzheimer’s Society to promote resources available to NHS organisations and the NHS workforce.
As part of this activity, they have specially commissioned a short video of an interview with Dementia Carer Voices’ very own Tommy Whitelaw.

You can get more information here on NHS Employers 
This video was made to mark this year’s Dementia Awareness week 





You can click on the image Below to preview the  trailer for a longer film which will be launched on 12th December in NHS Ayrshire and Arran University Hospital Ayr lecture theatre.
make a difference film

Full version of Make a difference with the staff nhsaaa 
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Thursday, 2 August 2018

Celebrating People, Places,Approaching 19,000 Pledges to Make a Difference

Celebrating People, Places, approaching 20,000 Pledges to Make a Difference


                         

The Dementia Carer Voices team would like to say a huge thank you to everyone who has made a pledge, and everyone we have met along the way so far on our You Can Make a Difference campaign. We are absolutely delighted to have now received more than  19,000 pledges!


This is a wonderful milestone to reach and would not be possible without the commitment and passion of everyone who attends our talks, reads about our campaign and pledges to make a difference to the lives of people with dementia and their carers. We have reached over 130,000 people across more than 700 talks and have met so many remarkable people so far.
These more than 19,000 pledges are from a personal perspective so each of them is unique and from the heart. More than 19,000 people have stopped and reflected on what they can do in their lives to make a difference. And no matter what your role, everyone has the potential to transform the lives and experiences of people with dementia and their carers, often in seemingly small ways.
We are really proud to be able to work with the Chief Nursing Officer for Scotland Professor Fiona McQueen and the Chief Nursing Officer for England Professor Jane Cummings you away from our website), sharing key messages from both and feeding back on the aims and outcomes of the people we have met.
You can read all of the pledges we have received so far on our website, as well as our pledge case studies, most recent publication and 5 Steps to Change resource.
The campaign will continue throughout the year. If you have been inspired to make a pledge yourself, you can email us at dementiacarervoices@alliance-scotland.org.uk We’d love to hear how you plan to make a difference!
Commenting on this huge milestone, our UK Lead Tommy Whitelaw said that

‘it has been a remarkable experience meeting so many inspirational people who do so many incredible things. We are inspired by the pledges and how people have been turning their good intentions into purposeful action.”
ALLIANCE Director Irene Oldfather added that

“these 19,000 pledges demonstrate Dementia Carer Voice’s ability to create a social movement for change by raising knowledge, understanding and awareness of living with dementia whilst promoting person-centred rights-based care to enhance the lives of people living with dementia.”
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Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Wednesday, 1 August 2018

Living with Dementia - Caring for a loved one - Further support andInformation

There is an increasing range of help available to support day to day life for those affected by dementia, including assistance with speech and language, nutrition, adaptations and equipment and specialist occupational therapy services. Information about the full range of services available to support people with dementia and their carers in your area can be obtained by contacting your local Social Work Department and /or GP practice.
Under the Scottish Government’s Post Diagnostic Support Guarantee, anyone diagnosed with dementia on or after 1 April 2013 is entitled to receive a minimum of a year’s worth of dedicated post-diagnostic support, coordinated by a named link worker. This support is designed to help the individual and their family adjust to the diagnosis, navigate through the services available and plan for future care. You can find out more by contacting your GP or local Community Mental Health Team.

Alzheimer Scotland:

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Alzheimer Scotland’s specialist dementia services provide personalised support designed around each individual, including 1:1 support and day services. Their local Dementia Advisors and 24 hour Dementia Helpline are always there for advice and information. Their branches and community activities, from dementia caf├ęs to football memories, are a great way to meet other people and benefit from mutual support.
24 hour Dementia Helpline: Freephone 0808 808 3000

‘Getting to Know Me’ resource:

Getting to know me
If the person you care for is admitted to an acute hospital setting, you can ask a member of staff for a ‘Getting to Know Me’ form. This allows you to record personal information about their likes and dislikes, names of family and friends, and what may be worrying them while they are in hospital.
The information, which will be kept at the bedside, helps staff to build a fuller understanding of your loved one’s life story, preferred routines and specific pieces of information which may be helpful during a hospital stay or attending outpatient services such as what helps them to rest or relax.

Charter of Rights for People with Dementia and their Carers:

Charter
The Charter of Rights for People with Dementia and their Carers in Scotland sets out the rights of people with dementia and those who support them, aiming to empower them and the community as a whole to ensure these are recognised and respected.

The Standards of Care for Dementia in Scotland:

Standards
The Standards of Care for Dementia in Scotland are designed to inform and empower people with dementia and their families and carers on the level and quality of care they should expect from all dementia services and in all care settings. The standards also tell people what they can do if they think the standard of care to which they are entitled is not being met.

Glasgow City Dementia Strategy:

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The emerging Health and Social Care Partnership in Glasgow is working alongside Alzheimer Scotland to develop a Glasgow City Dementia Strategy which will be published early 2016. This strategy will provide a framework to support high quality dementia services and help create a Dementia Friendly Glasgow.
Please click here to read Glasgow Dementia Strategy WEB.

Care Inspectorate:


Care inspectorate logo
Regulates the quality of social work and registered care services. It can investigate complaints against registered care providers.
Compass House, 11 Riverside Drive, Dundee, DD1 4NY.

Self Directed Support:

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The Self-directed Support Act aims to provide local authorities with a power to support carers in their caring role. To find out more information, please visit  www.selfdirectedsupportscotland.org.uk 

Scottish Public Services Ombudsman:

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Considers complaints about organisations providing public services in Scotland, normally only once you have been through the complaint procedure of the organisation involved.4 Melville Street, Edinburgh, EH3 7NS.

Equal Partners in Care:

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Equal Partners in Care (EPiC) is a joint project between NHS Education for Scotland (NES) and the Scottish Social Services Council (SSSC).
They aim to support workers from health, social services and other sectors to work in partnership with carers and young carers, and to achieve better outcomes for all involved in the caring relationship.

MindMate App:

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MindMate is the ultimate platform for people with dementia, their families and caregivers. The award-winning MindMate App engages people with Alzheimer’s and helps them stay independent. Together with MindMate+ this gives caregivers and family members peace of mind by providing remote access and useful tools to offer a helping hand regardless of their location.
With great support of the ALLIANCE, the Dementia Carer Voices team and especially Thomas Whitelaw as community advisor, the MindMate Team follows the mission to not only raise awareness but to make a real difference for people affected by dementia.
Find out more: www.mindmate-app.com
Download the free IPhone and IPad App here: itunes.apple.com/gb/app/mindmate-empowering-people/id1030422375

Video blogs and interviews featuring Tommy are available below:



Healthcare Improvement Scotland:

healthcare improvement scotland logo
Healthcare Improvement Scotlandis the national healthcare improvement organisation for Scotland and part of NHS Scotland. They work with people who use supports and services, carers, communities, staff who provide care in hospitals, GP practices, clinics, NHS boards and the public.
They promote 5 key “Must Do with Me” areas which aims to ensure that people are at the heart of their health care and support plans.


Health Innovation Network:

The Health Innovation Network have put together a Dementia Peer Resource Pack  which brings together evidence based resources to help community groups and funders set up and run peer support groups, as well as guidance on how to make older people groups more dementia friendly. It includes films, case studies, policy and research related to the benefits of peer support, as well as resources on funding, staff training and evaluation of groups. It was developed in England and whilst the policy landscape is different, it is a valuable learning resource.

NHS Health Scotland – dementia publications web links:

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Coping with dementia: A practical guide for carers 
Date: 10 April 2014
Description: This book contains information and advice for people who care for someone in the middle to late stages of dementia (moderate to severe dementia). It aims to: – help you feel less alone – give you practical advice on coping – help you to find caring more rewarding and less stressful – show you where to go for help and for more information.
Coping with dementia DVD
Understanding dementia: A guide for young people 
Date: 22 August 2012
Description: This booklet is for you if you’re a young person, and someone you’re close to has dementia. Maybe it’s your mother or father, one of your grandparents, another relative or a family friend. This booklet will help you to understand what dementia is, and what’s happening to the person with dementia, cope with the effect the person’s illness has on you, and find help and support if you need it.
Worried About Your Memory?
This resource is designed to help you understand more about memory loss, so if you are worried – either about your own or someone else’s memory – you can seek advice and, if necessary, get treatment.
Living Well With Dementia (previously Facing dementia)
Date: 14 April 2014
Description: A booklet for those who are either worried about dementia or who have been diagnosed. It provides reassurance and suggests practical steps to improve or maintain dignity and the quality of life as far as possible.
Living Well with dementia DVD
Younger people with dementia: living well with your diagnosis
Produced by NHS Health Scotland in partnership with Alzheimer Scotland and the Scottish Dementia Working Group, ‘Younger people with dementia: living well with your diagnosis’ DVD is designed for the person who has just been diagnosed with younger onset dementia (dementia under the age of 65) and for the family and friends of the person diagnosed.
The DVD provides insights and information from younger people with dementia and their family carers about their journey to diagnosis and which resources are available to support living well with dementia. The DVD aims to provide information on:
  • helping people in the early stages of diagnosis to understand more about their illness
  • sharing experiences around how to ‘live well’ after a diagnosis of dementia, as well as offering practical advice on coping with its effects
  • suggesting where people with younger onset dementia, their families and carers can go for further support.
  • Younger people with dementia: living well with your diagnosis DVD
  • http://www.healthscotland.com/uploads/documents/22313-Younger%20people%20with%20dementia.pdf


Dementia and Sight Loss:

RNIB logo
The Royal National Institute for the Blind together with Alzheimer’s Scotland have produced an information booklet on Sight Loss and Dementia, available here.
They have also produced Top Tip Cards on how to support Older Person with Sensory Loss, available here and here.
For further support, please call the RNIB Helpline on 0303 123 9999
A full list of their resources can be accessed at

A full directory of our videos can be found on our Youtube channel here.

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “ No – one ever asked   ” highlighted the transformational impact that ...