Tuesday, 4 October 2016

View New Induction Film with Healthwatch Essex, Broomfield Hospital and Dementia Carer Voices.

                                


Hi 

I am so very honoured to have take part in this new staff Induction film with Healthwatch Essex and Broomfield Hospital 

you can view the film via the link at the bottom of the page 



Sophie Blythe from Healthwatch Essex’s Engagement Team

I first met Tommy in June 2015 when I invited him to speak at our annual Healthwatch Essex Ambassador event.  I had been forwarded a link to one of his films and, from that moment, I knew that we absolutely had to work with him!  Since then, Healthwatch Essex and Dementia Carer Voices have worked on a couple of projects together, the latest being our ‘Putting care into dementia care’ training film – soon to be embedded in Mid Essex Hospital Trust’s induction training programme.


Around the time we first worked with Tommy, Healthwatch Essex launched a free Dementia Handbook for carers, which brought together information about the sources of care and support in Essex available to people who are living with dementia and their carers. This was developed in response to a piece of research we had conducted not long before, where we discovered that people experienced difficulty and confusion when trying to find out about care and support services.


Later on that year, we launched our Carer’s project, to raise awareness of the issues affecting carers in Essex. The findings of one of our reports “Carers Said” has since been used as evidence by the Department of Health. One of our first ventures for this project was our ‘Carers’ Journey’.  We invited Tommy back to join us on a three-day road trip of Essex in our Chatterbox cab, delivering a series of talks at hospitals, care providers, carers groups and universities. We used Tommy’s powerful story to highlight the importance and value of listening to people’s lived experience of services, in order to find ways to improve them. Hundreds of health and care professionals made pledges of small actions to make a difference to the lives of patients and their carers.


Broomfield Hospital in Chelmsford took part in our ‘Carers Journey’ tour. We were impressed with the exciting projects and activities going on at the Hospital, for example their Forget-Me-Not garden, designed to offer a calm, sensory space to support people diagnosed with dementia. The team at Broomfield were keen to collaborate with us to develop their work even further, and that is where the idea for a training film was conceived.



So earlier this year we invited Tommy back to Essex and spent a day filming discussions and interviews with nurses, matrons and dementia specialists at Broomfield hospital. Linking these clips to parts of Tommy’s powerful talk, and featuring testimonies from staff, the film illustrates how listening to the patient’s story can inspire innovations in person-centred care. By taking the time to find out more about the person, and what matters to them, we can communicate more effectively with them, develop meaningful activity plans and better understand their needs and wishes.
As an organisation, Healthwatch Essex believes the best services are those that are developed and delivered by listening to people and using that lived experience to help shape them. This training film harnesses the passion and drive of Tommy and the staff at Broomfield Hospital and demonstrates how health and care professionals can make their patient’s (and carer’s) experience the best it can possibly be.

Tommy will be back once again to launch the film at our ‘Premiere’ on 28th September at Broomfield Hospital. It has been a fantastic experience working with such passionate and committed people. We urge all health and care professionals to watch it and learn from it and put into practice. Can you be that person to make a difference?


You Can View the Film Here ‘Putting care into dementia care’ training film is a collaboration between Healthwatch Essex, Broomfield Hospital and Tommy Whitelaw, from Dementia Carer Voices.






Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Monday, 3 October 2016

Do you support or look after someone with dementia? University of Glasgow would like to hear your views

Do you support or look after someone with dementia?  If so, researchers at the University of Glasgow would like to hear your views.

We would be seeking you  to take part in a single focus group. This would be to discuss the experiences of carers of people with dementia in finding, arranging and using care and services and would last 2 hours at most. A £10 gift voucher would be offered to participants and travel expenses would also be refunded. If you are interested and would like more information please contact Kathryn Saunderson: email Kathryn.saunderson@gla.ac.uk , phone 0141 330 8322.

Attached is a flyer with further details about the project and how to get  glasgow-university-research-flyer








Saturday, 1 October 2016

140 Talks confirmed for 2016 - all dates at the link HERE





Our Make A Difference tour continues 2016  across the country,Last year I had the great privilege to speak at over 200 events  we are  truly inspired with over 10,000 personal pledges received to date 
 
We will be keeping in touch with individuals,Health Boards ,trusts,groups people who have already pledged to try and support encourage and help fulfill 
Looking forward to meeting more Difference Makers over 2016 

January
·         08.01.16 2 talks UCLAN
·         12.01.16 2 talks Shrewsbury NHS
·         19.01.16 Musgrove Park Hospital
·         21.01.16 HFMA South Central Conference
·         22.01.16 Speaking and pledge film with Broomfield’s Hospital
·         26.01.16 Manchester Metropolitan University
·         27/28.01.16 2 talks Annual Budget Conference, Devon
·         29.01.16 Understanding and acting on patient experience conference, London
February
·         03.02.16 4 talks CCSH, Surrey
·         04/05.02.16 5 talks Ashford and St Peters Hospitals
·         08.02.16 Stobhill Care Home
·         10.02.16 University of Cumbria
·         19.02.16 NHS England Care Makers Celebration
·         22.02.16 Papworth Hospital
·         24.02.16 NHS BHR Hospitals
·         26.02.16 Alzheimer Scotland Summer Ball Inverness  
·         29.02.16 Scottish Ambulance Academy - Glasgow
March
·         01.03.16 NHS Lincoln Hospital
·         02.03.16 NHS Lincolnshire Annual conference 
·         03.03.16 Scottish Ambulance Academy – Glasgow
·         04.03.16 Scottish Ambulance Academy – Glasgow
·         07.03.16 Stobhill Care Home
·         08.03.16 NHS Leadership Academy Conference
·         09.03.16 3 talks Hairmyres Hospital - East Kilbride
·         10.03.16 Meeting Scottish Ministers
·         11.03.16 National Clinical Leaders Event, Watford
·         14.03.16 Cornwall NHS
·         16.03.16 Leadership Academy Event Loughborough University
·         17.03.16 NHS Patient Insight Team Experience
·         22.03.16 Bolton NHS Trust
·         23.03.16 Matthew Fife Care
·         30.03.16 UCLAN University
April
·         06.04.16 3 talks Manchester University
·         08.04.16 International Conference of Dementia, University of Chester
·         14.04.16 Celebration Event, Penrith

·         15.04.16 Carer watch, Livingston
·         20.04.16 Dementia Training Day, Southern General
·         22.04.16 Speech and Language Conference at Queen Margaret University
·         25.04.16 Health Foundation Conference, Gateshead
·         27.04.16 Speaking Cumbria
·         28.04.16 West Collage Scotland
·         28.04.16 Caring for Carers Event, Glasgow
·         29.04.16 Speaking Hamilton, Dementia Ambassadors

May
·         04.05.16 Lincoln County Hospital
·         05.05.16 3 talks West of Scotland Housing Association
·         06.05.16 Lanark Care Home
·         11.05.16 Patient Experience Conference London
·         12.05.16 Salford Royal Hospital
·         12.05.16 Stirling Council Libraries, Drymen
·         17.05.16 Keele University
·         18.05.16 London (Details TBC)
·         19.05.16 North Devon NHS Trust
·         20.05.16 Carewatch, Stirling
·         23.05.16 The ALLIANCE Conference
·         30.05.16 BBC Radio Scotland with Kaye Adams

June
·       01.06.16 Pledge tree launch at Hairmyres Hospital
·       09.06.16 HMFA Midlands Conference
·       10.06.16 Dementia Ambassadors event in Kirkcaldy
·       11/12.06.16 NOHPG Conference, Leeds
·       13.06.16 Links worker programme event in Glasgow
·       14/15.06.16 NHS Scotland Conference
·       17.06.16 BBC Reporting Scotland
·       20/21.06.16 Belfast, Sean Maher
·       22.06.16 Royal College of Nursing Conference, Hydro
·       22.06.16  BBC Scotland 6 o’clock news
·       28.06.16 EESC SOC dementia session in Brussels
July
·         04.07.16 5 talks West Herts NHS Trust
·         05.07.16 Patient Experience Conference, Manchester
·         05.17.16 Wishaw Hospital
·         18.07.16 Crosshouse Dementia Care Home Event 


·         22.07.16 Central Lancaster and BWD
·         25.07.16 Ashford and St Peters Hospital
·         26.07.16 NHS Leadership Event, Leeds
August
·           02.08.16 4 talks in Arran with Irene
·           10.08.16 Dalmellington Care Home. Ayr
·           12.08.16 Fairknowe Care Home, Maybole
·            17.08.16 Thistleknowe Care Home
·            23.08.16 Dementia Frinedly Girvan
·            24.08.16 South Ayrshire Carers
·           30.08.16 Uddingston Hospital

September
·         05.09.16 Katherine House Hospice
·         06.09.16 RCN North West
·         07.09.16 NHS Expo
·         08.09.16 Manchester NHS Trust
·         13.06.16 3 talks NHS Belfast
·         14.09.16 UWS Hamilton
·         17.09.16 Dental Nurse Society conference
·         16.09.16 2 talks UWS Ayr
·         19/20.09.16 Dementia UK Conference
·         21.06.16 NHS Belfast
·         22.09.16 Carers Association, Birmingham
·         23.09.16 Heart of England Carers Conference
·         27.09.16 Kings College London
·         28.09.16 Health watch Essex

October
·         05.10.16 Bromley Healthcare
06.10.16 Independant living conference 
·         08.10.16 HMFA, Kent
·         13.10.16 Catering Services
·         10.10.16 Glasgow Clyde College
·         15.10.16 church nurses association
·         18.10.16 2 talks QI Belfast
·         19.10.16 Social Workers Belfast
·         24.10.16 North Ayrshire Council
·         26.10.16 Chichester Nursing Conference
·         27.10.16 Picker Institute
·         Honorary Master’s Usher Hall


November
·         01.11.16 Chichester Nursing Conference
·         02.11.16 GCU Nursing Students
·         03.11.16 End of Life Care Conference – Shrewsbury
·         04.11.16 Musgrove Park
·         07.11.16 Arbroath Dementia Ambassadors
·         08.11.16 Nursing Standard Conference
·         09.11.16 National Nursing Conference
·         10.11.16 Park Springs Care Home Motherwell
·         11.11.16 Leadership Awards  
·         14.11.16 Hinchingbrook Conference
·         16.11.16 3 Talks Care Watch Motherwell
·         17.06.16 RCN Dundee 
·         21.11.16 University Glasgow Nursing Students
·         23.11.16 Association for Prescribers Conference, London
·         27.11.16 National Physio Conference
·         28.11.16 Launch Pledge trees Glasgow Clyde College
·         29.11.16 Patients Experience Conference
30.11.16 Bupa Dementia Ambassador Conference

December
·         08.12.16 Bristol Universities
·         09.12.16 Dementia Prevention Conference Paris
·         12.12.16  3 talks St Giles Hospice
·         14.12.16 Health Education England West Midlands
·         16.12.16 3rd Year Nursing students UCLAN




·         
  

Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Guest Post via Kim Pennock -From the depths of despair I tread lightly again

This weeks Guest post is from my dear friend  Kim Pennock @beachcomberplus

kim has shared her story and thoughts with us a few times before ,Lets hear what Kim has to say .....

From the depths of despair I tread lightly again

#dementia #alzheimers #carers #health
Well here I am back in the land of reality following a year out with carer stress.
Sounds so lame to say this but carers stress? What is that exactly?

Well I had no idea at all that I was “suffering” from anything other than a broken heart!
Seeing my beloved mum settled, and I guess institutionalised, at the care home she was taken into has been the toughest and most guilt ridden journey I have ever been on.

The sleepless nights full of tears and anger, the pains in my chest the feelings of hopeless despair and the endless headaches and fears led to a GP trip and a diagnosis of stress.

Now…I am a very stubborn person where my own health and self is concerned and I felt like a strong person so this was a shock really and I felt useless…and it’s not me who is in care but mum so what the hell am I stressed about?

This crept up on me over a period of 6 years …largely thanks to the lack of support from the so called professionals, lack of advice and help, constant battles with family or people who wouldn’t make decisions in mums best interest and the endless middle of the night calls and mums wanderings at night involving a police search.

“So how the hell must my darling mum feel and how dare I crumble when needed most!” This ran through my mind as the GP  spoke.

Having spoken to many carers I now realise all these emotions are what many feel and that has helped me clear my thoughts, adapt my functioning process and breathe!
In this world of Dementia we carers just get on with it and care often putting ourselves to one side….

A loved one deserves a life not a life sentence just because of a diagnosis so what have I learnt?
Every unique individual is exactly that… An individual and that’s the point where some can’t quite grasp this Dementia diagnosis…. No 2 people are the same so no 2 people will react or cope the same and that includes we carers.
All we can try to do is understand, care, give, cope, laugh and most of all live! Together inclusive and United on the Dementia journey for it is a journey.

I feel more able to be the me that mum created and to be that caring compassionate vocal supportive daughter. I have learnt to let go.

I have accepted what I can’t change so choose instead to jump back into campaigning for the rights of the most wonderful people like my mum who have no voice when they most need it.
Forever and always for my mum


Thanks for reading my blog, You can now view my 8 short flims here! http://tommy-on-tour-2011.blogspot.co.uk/2014/05/my-mums-name-was-joan-this-is-our-story.html
DCV photo DementiaCarerRGBlandscape3_zpsa2f3d5ff.jpg

Honored Speaking at the NHS Southwest Leadership Recognition Awards Nov 11th

Hi

With Great thanks toTasmin Ackland and all at the South West Leadership Academy (SWLA)
for the great honour  and invite to speak at the NHS Southwest Leadership Recognition Awards Nov 11th in Bristol 

This is such a great Honour and I look forward to attending,speaking,meeting everyone and hearing about the inspirational people and stories on the night  

you can find out more at the link here web: www.southwestleadership.nhs.uk    









                                  
       

                                        




My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “ No – one ever asked   ” highlighted the transformational impact that ...