One mans mission to raise awareness of dementia.
Son, Carer, Campaigner.
Are you a carer?
Please watch my short film, which includes families and carers reading from the letters they sent me.
If you would like to share your story or make a persoanl pledge to make a difference please email email@example.com
Monday, 1 August 2016
celebrating 5th Anniversary of campaigning and Friendships
June 6th will be 5 years to the day
since I began walking around Scotland’s towns and cities to collect the life
and love stories of people across Scotland who care for a loved one with
dementia. This will also be the 5th year of my friendship with my now Director
and mentor Irene Oldfather.
At the time of my walk, I was a
full-time carer for my beautiful, kind, and caring mum- Joan, who had Vascular
Dementia. My kind mum passed away in September 2012.
I felt passionately that no one
should have to face the confusion, loneliness, and isolation that we felt. On
6th June 2011 I began my tour, collecting hundreds of life story letters,
detailing the experiences of individuals caring for a loved one living with
An issue that struck me during my
journey caring for my mum was the lack of awareness and understanding of
dementia, and the way in which we perceive this illness as a wider
society. My door was always open but no one walked through it, people
didn’t come to visit us anymore, and I truly believe that was down to the
stigma surrounding the illness.
Everyone affected by dementia has a
unique story to tell, and by sharing our experiences we can help to tackle the
misunderstandings surrounding dementia and offer hope to people in the same
Since then, I have met with thousands
of carers, health and social care professionals, and students through my
original ‘Tommy on Tour’ blog and now as Project
Engagement Lead with the Dementia Carer Voices Project at the Health
and Social Care Alliance. Trying my best every day, working
alongside my friend, Director, and mentor Irene Oldfather, my friends &
team mates Laura and Ashleigh, and colleagues at the ALLIANCE in taking the
life and love stories of carers who have written to us, carers we have met in
person, spoken to on the phone, heard from through email or through our online survey and shared these with
health and social care professionals, students, MSPs and members of the
public to raise awareness of the impact of dementia on families and the
importance of empowering carers in carrying out their difficult but vital
role. You can view 10 films documenting this story at the
Our work continues,You can read more about the work we do below
I feel so Honured to have met so many inspiring people along the way in fact I meet incredible people every day dedicated to making a difference for others
There are so many people to thank for all the support over the years ,Irene Oldfather,Ian Welsh OBE my team mates present Laura and Ashlegh and Past Chris and Sarah my wider Colleagues at the ALLIANCE amazing people who have shared their stories with and the incredible families,Carers and health and social care professionals I have been so lucky to meet in person
Thank you for all that you do. Thank you for the amazing kindness and support over the last 5 years
I would also like to thank First Minister Nicola Sturgeon for Holding My Mums Hand In the last months of my mums life and for encouraging me to take our voices across the country
Together we can make a difference.
Make a Difference campaignupdate
We have engaged with over 50 ,000 people in person over the last 2 years, collecting over 10,000 personal pledges from health and social care professionals and we’d like to share some of their inspiring words, and help celebrate the work they do to make a difference to the people they care for.