Welcome to the latest edition of Dementia Carer Voices' newsletter
, where you can stay up to date with what the team has been up to over the last two months
and find out about current opportunities and events where you can have your say.
Launch of Pollok Community Pledge In partnership with Glasgow Clyde College and Humza Yousaf MSP, Minister for Transport and Islands, Dementia Carer Voices launched a community pledge in Pollok, giving constituents the chance to reach out to their neighbours and help reduce isolation and loneliness.
Project Engagement Lead Tommy Whitelaw is a life-long constituent of Pollok, where he was born and later returned to care for his late mum Joan. From the success of our You Can Make a Difference campaign, the team wanted to extend the invitation to the community to make a pledge to the whole community of Pollok, not just to people living with dementia and their carers, but to their neighbours and wider community. Chaired by Director Irene Oldfather, the event celebrated pledges made by students at the Glasgow Clyde College, introduced participants to their local link worker, and the community assets currently mapped on ALISS. Read more about the day here.
Journal gives platform to carers of people with dementia
This month a joint article has been published between the ALLIANCE and the University of Glasgow, based on the letters Project Engagement Lead Tommy Whitelaw collected from carers across Scotland. These letters have been analysed by Jane Joy and Diane Willis from Glasgow University, with the results of their study now available:
Speaking about the recent publication, ALLIANCE Director Irene Oldfather said ‘Advancing the rights of people with dementia, and their carers who sometimes face extraordinary challenges and barriers in communicating their needs and wishes, is a just cause. By harnessing the power of carers’ lived experiences, the You Can Make a Difference campaign speaks to the hearts of people and communities across Scotland, with the simple message that dementia is everyone’s business and that you have the power to transform the experiences of people affected by the condition.”
Honorary Master for health, social care, and policy influence
Our Project Engagement Lead, Tommy Whitelaw was awarded an Honorary Degree, Master of the University for Health, Social Care, Education and Policy making influence
Speaking about the award, Tommy said 'I am so very honoured and grateful to the Open University for the great honour to have been awarded an Honorary Degree for my work across the UK on dementia and caring. With great thanks to Peter Horrocks CBE (Vice chancellor), Joyce Cavaye and all at the Open University.'
Alzheimer’s Outlook 2016 Prospective Focus Group December 2016
The Fondation Médéric Alzheimer initiated in 2007 a strategic reflection on how the future context of dementia may unfold in the next decades, in collaboration with international experts. This challenging endeavour implies engaging with uncertainty within limits of scientific plausibility. This prospective reflection is called the Alzheimer’s Outlook.
On the 06 January 2017 the ALISS service is introducing some exciting new changes. From this date, account holders will notice a difference as to how you access the ALISS service and the majority of features will be moved to the new website. This means that the current website will no longer support features such as signing up for a new account, logging in to a current account, adding a new resource, or changing an existing resource. These features will all be available on the new beta website. Read more about the changes in this blog post.
New Carer Positive Resource
Carer Positive has produced some new resources designed to help employers develop a package of support best suited to carers who are still in work. The resource discusses suggestions and examples on the types of measures employers can take to provide a supportive working environment for carers in their workforce. For more information please click here.
Healthcare Improvement Scotland published the clinical standards for neurological health services in 2009. A review of these standards will include further scoping work with the clinical community and stakeholders to develop recommendations for the future of the clinical standards for neurological health services. To facilitate this work, a short life working group will be chaired by Healthcare Improvement Scotland with representation from clinicians, the third sector and patients/carers. Healthcare Improvement Scotland are seeking nominations for two patient or carer representatives. Two meetings will be held at Healthcare Improvement Scotland, Delta House, 50 West Nile Street, Glasgow, G1 2NP on Wednesday 25th January 2017 and Thursday 30th March 2017 1-4pm. If you would like to participate in the review of the neurological standards as a patient or carer representative please get in touch with email@example.com
The next meeting of the Neurological Programme Involvement Network will be 15th December at the ALLIANCE offices, 349 Bath Street. The meeting will be held from 10am to 3pm with lunch included. Email firstname.lastname@example.org to confirm your place
From the whole team, we would like to wish you a very merry Christmas
and a happy new year! 2016 has been an incredible year,
with over 11,000 pledges collected as part of our You Can Make a Difference tour.
You can read every single pledge here, and find out how
hospitals, care homes, universities, and colleges are pledging to make a difference
in our pledge case studies.