Are you a carer?





Please watch my short film, which includes families and carers reading from the letters they sent me.






If you would like to share your story or make a persoanl pledge to make a difference please email tommy.whitelaw@alliance-scotland.org.uk

Sunday, 2 November 2014

Further support and information - Dementia - Caring


                                                            

There is an increasing range of help available to support day to day life for those affected by dementia, including assistance with speech and language, nutrition, adaptations and equipment and specialist occupational therapy services. Information about the full range of services available to support people with dementia and their carers in your area can be obtained by contacting your local Social Work Department and /or GP practice.
Under the Scottish Government’s Post Diagnostic Support Guarantee, anyone diagnosed with dementia on or after 1 April 2013 is entitled to receive a minimum of a year’s worth of dedicated post-diagnostic support, coordinated by a named link worker. This support is designed to help the individual and their family adjust to the diagnosis, navigate through the services available and plan for future care. You can find out more by contacting your GP or local Community Mental Health Team.
ASAD Logo
Alzheimer Scotland’s specialist dementia services provide personalised support designed around each individual, including 1:1 support and day services. Their local Dementia Advisors and 24 hour Dementia Helpline are always there for advice and information. Their branches and community activities, from dementia cafés to football memories, are a great way to meet other people and benefit from mutual support.
24 hour Dementia Helpline: Freephone 0808 808 3000
‘Getting to Know Me’ resource
Getting to know me
If the person you care for is admitted to an acute hospital setting, you can ask a member of staff for a ‘Getting to Know Me’ form. This allows you to record personal information about their likes and dislikes, names of family and friends, and what may be worrying them while they are in hospital.
The information, which will be kept at the bedside, helps staff to build a fuller understanding of your loved one’s life story, preferred routines and specific pieces of information which may be helpful during a hospital stay or attending outpatient services such as what helps them to rest or relax.
Charter
The Charter of Rights for People with Dementia and their Carers in Scotland sets out the rights of people with dementia and those who support them, aiming to empower them and the community as a whole to ensure these are recognised and respected.
Standards
The Standards of Care for Dementia in Scotland are designed to inform and empower people with dementia and their families and carers on the level and quality of care they should expect from all dementia services and in all care settings. The standards also tell people what they can do if they think the standard of care to which they are entitled is not being met.
Care inspectorate logo
Regulates the quality of social work and registered care services. It can investigate complaints against registered care providers.
Compass House, 11 Riverside Drive, Dundee, DD1 4NY.
Equal_Partners_in_Care-final
Equal Partners in Care (EPiC) is a joint project between NHS Education for Scotland (NES) and the Scottish Social Services Council (SSSC).
They aim to support workers from health, social services and other sectors to work in partnership with carers and young carers, and to achieve better outcomes for all involved in the caring relationship.

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Considers complaints about organisations providing public services in Scotland, normally only once you have been through the complaint procedure of the organisation involved.4 Melville Street, Edinburgh, EH3 7NS.
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NHS Health Scotland – dementia publications web links
Coping with dementia: A practical guide for carers
Date: 10 April 2014
Description: This book contains information and advice for people who care for someone in the middle to late stages of dementia (moderate to severe dementia). It aims to: – help you feel less alone – give you practical advice on coping – help you to find caring more rewarding and less stressful – show you where to go for help and for more information.

Coping with dementia DVD

Understanding dementia: A guide for young people
Date: 22 August 2012
Description: This booklet is for you if you’re a young person, and someone you’re close to has dementia. Maybe it’s your mother or father, one of your grandparents, another relative or a family friend. This booklet will help you to understand what dementia is, and what’s happening to the person with dementia, cope with the effect the person’s illness has on you, and find help and support if you need it.


Worried About Your Memory?
This resource is designed to help you understand more about memory loss, so if you are worried – either about your own or someone else’s memory – you can seek advice and, if necessary, get treatment.

Living Well With Dementia (previously Facing dementia)
Date: 14 April 2014
Description: A booklet for those who are either worried about dementia or who have been diagnosed. It provides reassurance and suggests practical steps to improve or maintain dignity and the quality of life as far as possible.


Living Well with dementia DVD

Younger people with dementia: living well with your diagnosis
Produced by NHS Health Scotland in partnership with Alzheimer Scotland and the Scottish Dementia Working Group, ‘Younger people with dementia: living well with your diagnosis’ DVD is designed for the person who has just been diagnosed with younger onset dementia (dementia under the age of 65) and for the family and friends of the person diagnosed.
The DVD provides insights and information from younger people with dementia and their family carers about their journey to diagnosis and which resources are available to support living well with dementia. The DVD aims to provide information on:
  • helping people in the early stages of diagnosis to understand more about their illness
  • sharing experiences around how to ‘live well’ after a diagnosis of dementia, as well as offering practical advice on coping with its effects
  • suggesting where people with younger onset dementia, their families and carers can go for further support.
  • Younger people with dementia: living well with your diagnosis DVD
  • http://www.healthscotland.com/uploads/documents/22313-Younger%20people%20with%20dementia.pdf

Dementia and Sight Loss
The Royal National Institute for the Blind together with Alzheimer’s Scotland have produced an information booklet on Sight Loss and Dementia, available here.
They have also produced Top Tip Cards on how to support Older Person with Sensory Loss, available here and here.
For further support, please call the RNIB Helpline on 0303 123 9999
A full list of their resources can be accessed at

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