Saturday, 5 July 2014

Witnessing my breakdown - we must and can do better

Fear, loneliness, struggle and a breaking heart: the words that most describe how I felt inside every day when caring for my mum.


Looking back now with a clearer head, how could no one see this? I mean, I was a mess. We were falling apart; I was struggling to cope, struggling to care.


People surrounded me as a campaigner, people encouraged me to campaign, people supported me to campaign yet at home nothing changed.


I tried to speak loudly yet no one seemed to hear MY cry for help. The thing that is a constant in my mind is "What about Mum?”

We had fragmented support, fragmented understanding.

I hoped from the crowd someone might recognise the mess we were in. I hoped from that crowd someone might truly hear what I was saying.

Was I a good bedroom campaigner? I don't know. 

What I do know is I wanted to be a good son, a good carer and in amongst all the talking loudly and campaigning, this hope, this wish, suffered most.


Was I a good son and carer?

I truly don't believe I was, I just did not know how. I was lost; we were both lost.


My mum deserved better, better than I was able to give. 

So this heart that was breaking will never truly heal.







No comments:

Post a Comment

Thank you for leaving a comment at the tommyontour blog. Your comment will be moderated and published very soon.

My mums name was Joan ,my Mum Had Dementia - our Story 9 Short Films

Tommy’s speech, providing a carer’s perspective,  on the theme of “ No – one ever asked   ” highlighted the transformational impact that ...