Dementia Carer Voices
Reaching out to carers of people with dementia and giving them a voice through a “letters campaign” has been part of the awareness raising activity of Tommy Whitelaw, who has experienced first hand what it is like to care for someone with dementia. Tommy has also made a film about dementia and caring for someone with dementia with a view to reaching a wide audience in the UK and beyond. Read Tommy's blog .
Dementia Carer Voices builds on the awareness activities from 'Tommy on Tour ' .This ALLIANCE project has been made possible with funding from the Scottish Government.
The ALLIANCE recognises the importance of the Carer Voice in informing future service provision and in empowering carers themselves. To this end the Dementia Carer Voices project aims to
In doing this, the ALLIANCE will highlight the importance of family carers being enabled after diagnosis to build and sustain a network of support, preventing crisis situations and feel enabled to ask for additional help when it is needed;
The project will do this through visits and talks to Carer Organisations; the provision of written materials with key carer messages; dissemination of information including through social media; network events and consider possible future film to raise awareness/understanding.
Read the first issue of the Dementia Carer Voices Newsletter here
Read the second issue of the Dementia Carer Voices Newsletter here
Read the third issue of the Dementia Carer Voices Newsletter here
You can sign up to recieve future updates by clicking here.
The project team have put together a short survey to enable them to capture key messages from carers which will be used to influence future policy.
If you have experience of caring for someone with dementia you can contribute and have your say on your hopes and concerns for the future by visiting http://www.surveymonkey.com/s/V7SYL2G
For further information read the Dementia Carer Voices Information Report or contact Programme Director Irene Oldfather , Project Officer Tommy Whitelaw or Policy and Information Assistant Christopher Doyle.
Tommy produced a short film, which includes families and carers reading from the letters they sent him.