itinerary Tommyontour 2012 /2013

Blog/Twitter/Facebook

My blog gets 9500 hits per month sitting on 101, 000, views at moment

And I have 2100 twitter followers from around, a significant number of them from Councils and Care providers.  I The story of my campaign, my film and blog is now on 30 sites across the world.

I have had articles in most nation newspapers and have received hundreds of life stories to date

16^th Feb 2012

I spoke at the Council meeting in Glasgow City Chambers and was present when they approved a motion for a Cross Party Dementia and Carers Group.

MOTION

Council recognises the inspirational efforts of Tommy Whitelaw in raising awareness of the issues effecting the carers and families of people suffering from Dementia through his “Tommy on Tour” campaign

Council agrees to set-up a Cross Party Working Group to engage with carers and to ensure that the services provided to carers are appropriate to the needs of the carers and those suffering from Dementia and that the Working Group’s findings be presented by Council to the Scottish Government.

Moved by

Councillor John Flanagan

Seconded by

Councillor David McDonald

I have been invited to be the Carers Representative on this group.  This will be formed after the local elections and there will be a representative from each party, Head of Social Work, Alzheimer Scotland and the North Dementia Forum. 

17^th Feb 2012

Meeting with Social Work and Adult Services.  I continue to be encouraged by their interest in my campaign and the discussions this generates about the people concerned.  They are looking at a way of setting up opportunities for me to talk within their departments.  They are keen to take this further.

20^th Feb 2012  

I was the guest speaker at a coffee morning hosted by the Age Concern Dementia Centre and East Renfrewshire Carers.  The audience included carers and Councillors and people who worked within the community of Eastwood i.e.  Housing and community service providers.

27^th Feb 2012

I met with Daniel Connelly who is the NHS Community Engagement Manager for Glasgow.  This meeting generated another talk to the heads of various departments within the NHS.  I will give more detail of this later in the report.

26^th Feb 2012

I met with Peter Daniels who is Non-executive vice Chair of Greater Glasgow Health Board.  Following this meeting Peter asked me to send him an outline of how we can work together to promote Dementia and Caring awareness within the areas he covers.  I continue to work on this and he will arrange a board meeting for him to discuss this with me.

28^th Feb 2012

I was invited to speak at the South Ayrshire Carers Centre to give a talk on my campaign. This should have been a group of carers and community workers however I had to cancel this the day before as I did not have enough money that week to take this journey.  I found this really upsetting but thankfully they are trying to rearrange the date.

28^th Feb 2012

I was a guest on the Kaye Adams show on BBC Radio Scotland.  This resulted in an unusually high response from the public in the number of callers who phoned in to give their support.  I had a call from the producers and we are discussing an hour long programme on the impact of being a carer has across society.

29^th Feb 2012

I spoke at Carrgomm Forum in Cardonald.  This was an important moment for me as this is the place where I gave my first talk on my campaign.  This was the result of me knocking on their door one day as their office is in the community where I live.  This has resulted in great friendships, great support and epitomises the belief I have in my campaign and the importance of getting out and speaking from my heart to the people of Glasgow and the broader communities.   Irene who works for Carrgomm has become a friend who has her own personal experience and has shared this in a letter to me.  She accompanied me to Parliament in November when I handed the first letters to you.

30^th Feb 2012

I had a second meeting with Daniel Connelly, NHS Community Engagement Manager, Glasgow NHS to discuss the up and coming presentation to the heads of department.

1^st March 2012

I was invited to speak to 50 social care students and 30 social media students at the Glasgow City College.  This has resulted in students following my journey through Facebook and asking how they can help and get involved but more importantly for me, 3 parents contacted me to tell me how I had inspired their children in their learning and future work within the care sector.  I am so proud of this.  Please see the reaction from their lecturers below.

3^rd March 2012

Today I spoke at St Margaret’s Hospice to 80 palliative care practitioners.  This has resulted in great feedback and invitations to more talks including an event for 45 district nurses which has been set up specifically for me to talk about caring for my Mum with Dementia.  Christine Hamill, Head of District nurses has organised this for May 2^nd based on the talk I gave today.

5^th March 2012

This was my second meeting with the Care Inspectorate who are using my letters as part of their training.  They have anonymised these letters and they will be used to give a better understanding of the lives of carers.  This is exactly what my vision was when I began this campaign.  David Cummings and I will host a meeting for carers to have an open discussion on what it means to be a carer for a loved one.

6^th March 2012

Council Maureen Child contacted me to congratulate me on my Motion at Glasgow City Council and on my wider campaign.  We met at Edinburgh City Council in early February and my motion was passed on 6^th March.

Councillor Child had submitted the following motion in terms of Standing Order 28:

“Committee recognises the inspirational efforts of Tommy Whitelaw in raising awareness of the issues effecting the carers and families of people suffering from Dementia through his “Tommy on Tour” campaign, supported by Alzheimer’s Scotland.

Committee therefore agrees to set-up a Cross Party Working Group to engage with carers and to ensure that the services provided to carers are appropriate to the needs of the carers and those suffering from Dementia.”

Decision

1)    To recognise the inspirational efforts of Tommy Whitelaw in raising awareness of the issues affecting the carers and families of people suffering from dementia through his “Tommy on Tour” campaign,

2)    To ask the Director of Health and Social Care to report back on the issues of dementia to the next meeting of the Committee.

We will revisit this after the local elections in May as with Glasgow.

March 9^th 2012.

I was invited to Carers Link in Milngavie   this being my third visit to them including their AGM.  I met with carers and people working within the local community and this resulted in me receiving more letters.  Alex from this group was also at Parliament in November to support me.

March 10^th 2012

On this day I attended the SNP conference.  This was the first political conference I had attended and I enjoyed the experience and I would like to extend my gratitude to the Deputy First Minister for taking the time on such an important day in her diary to invite a son, carer and awareness campaigner for a half hour coffee and an open and honest discussion about the life I and many others live as carers and about my hopes for the future.

March 13^th 2012

On this day I gave a presentation to the Acute Operating Division’s Patient Focus and Public involvement steering group.  The audience was 18 heads of departments within the NHS.  This has resulted in my film being available on NHS websites under “A Carers Experience.” and there is a planned tour of talks within the departments who were represented.  This will be known as “Tommy’s Journey – A Carers Experience.”  I could not have wished for more than to be given the chance to speak as a son and carer about my life and the lives of the people who contact me on a daily basis to people who are in a position to make a difference.

March 15^th 2012

Today I returned to Glasgow North East Carers to meet with family carers who attend this group and to update them on the progress of my campaign.  2 people from this group came to Parliament with me in November.

March 27^th 2012

Dementia through Art.  I put a message on my blog looking for Art students to help me raise awareness of Dementia by representing the words in the letters through the medium of Art.   The response to this was amazing and resulted in me meeting with Art students from Glasgow School of Art who are keen and passionate about this project – if they can find funding.  I believe an exhibition of art and the awareness and information this could bring would generate a great joint working project for organisations who support people with dementia and/or their carers.  My vision is that providers would come along to this day and give information to people who are looking for support to try to reach the wider public and bring more understanding.

March 30^th 2012

Follow up meeting with Daniel Connelly, NHS community engagement team for further exploration into how we can work together.

4^th April 2012

Baillieston Carers invited me back to their group to update them on the progress of my campaign.  Again this was attended by members of the local community and David who runs the group and Amanda who works there but also sent a letter accompanied me to Parliament in November.

5^th April 2012

I was a Guest speaker at Renfrew Carers Support group.  This was attended by Carers, people from the local community and Brian Lawson, SNP leader of Renfrewshire Council who came to the meeting to spend an hour speaking with me and joined in with the group discussions – something I would like to see more of.  He met people who were facing struggles and I commend him for arranging to look at some individual families who are desperately in need of urgent help.

10^th April 2012

I was a guest on good morning Scotland BBC radio and interviewed for BBC

Reporting Scotland to comment on the dementia champions announced by the government

13^th April 2012

Glasgow City College had the first meeting with students and lecturers who I had addressed earlier in the month to work on the up and coming project – Dementia and Care through the eyes of social care students.  I will attend their classes twice a month to advice them on the life of a carer and to share some information I have gathered during my campaign.  When finalised, I would like to give this project to you, without prejudice, as I find this idea motivating and a hopeful step for the future.  I believe that these students will benefit from the real life experiences and if this project is a success I would like this to be a template for such educational experiences throughout Scotland.

April 19^th 2012

I was invited to st Andrews house in Edinburgh by David berry who works on the dementia strategy, we had a meeting to discuss my campaign and how we can move things forward and keep dementia awareness a priority in my life and to a wider public

APRIL 24^TH 2012

Daily record article updating on my campaign

April 25^th

I was a guest speaker at the care road show concert hall Glasgow

April 26^th 2012

Article in the sun

April 27^th

Attending Glasgow City College dementia awareness event based on my campaign ,along with discussing future projects

2^nd May 2012

I was guest speaker to 45 District Nurses at Eastbank Health Promotion Centre.

CITY WIDE PALLIATIVE RESOURCES NURSES - "Dementia:  Put Yourself In Their Shoes” Wednesday 2 May 2012

May 8^th

Filmed for Scotland tonight

9^th May 2012

Morning I was guest speaker at the LTCA launch of their new Carers Involvement group. 

9^TH May

Afternoon meeting with Deputy First Minister

Met with DFM and civil servants from St Andrews house

May 10^th

3 minute video blog and story about caring and campaign up on Stv local web site

May 10th

Filmed interview for Scotland tonight

May 11th

Met with social works Glasgow Stephen Fitzpatrick and Ann Cummings

Discussed future talk to staff and students

August

May 15^th

Guest on Scotland tonight

May 18^th

Jeanette and kens Story featured on news all across UK

Jeanette sent me a letter we met and I set up coverage

MAY 25TH

Meeting with councillor Kerr and Stephen Fitzpatrick head of adult services to start work on motion I had passed in February should be July Ann Cummings from social work Glasgow will lead this group 

 MAY28TH

Speaking to NHS Glasgow board member via peter Daniels non exec vice chairman to

JUNE 1^ST

Meeting with Susan SNP councillor for langside

Susan is the social care spokesperson for SNP Glasgow city council

June 5th

Guest speaker to staff and families prince and princess of Wales’s hospice

June 8^th

Attending carers engagement meeting set up by SW NHS Glasgow

Then meeting with Simon hodgeson director carer Scotland

June 15^th

Meeting at Garnavel hospital to discuss dementia through Art permanent exhibition at hospital older people wards corridors

With tom MacKay and Jill Carson with tom MacKay

June 18^th

Tommyontour 3 minute video diary on Stv local

June 19^th

 Speaking at memory café via north Ayrshire council

Bridgend Community Center, Stoneyholm Road, Kilbirnie KA25 7DJ.

2:30pm

June 20^th

Meeting con Gillespie at home to discuss talks with NHS

Now working on future talks

June 20^th

Tommy on tour film and story now on Ayrshire council website

June 21^st

Speaking at PRTFC South Ayrshire carers

June 26^th

Tommyontour care inspectorate meets the carers’ event

July 8^th

Report on my campaign published by social work Glasgow

July 9^th

Meeting dementia strategy group

Glasgow North West sector board room Garnavel hospital

July 13^th

Meeting mental health team from St Andrews house

To update on campaign and discuss future work

July 16^th

Attending Glasgow south west carers talk with councillor Kerr

July 17^th

Attending Glasgow south west

July 20^th

Meeting social work Glasgow leads and councillor Kerr

Speaking at social work Glasgow managers meeting

July23^rd

Meeting team from Stirling University

 (via professor June Andrews)

To discuss ways of doing projects together

August

Gave presentation to dementia strategy team at Garnavel hospital NHS gg&C

AUGUST 9^TH

SPOKE AT Ailsa day hospital in Ayr

August 22^nd

Deputy first minister visits my mum at home

August 24^th

Met with dementia consultants

Con Gillespie Sandra shields NHS gg&c 

Augusts 27^th

Attended launch of BletherBox dementia on-line forum in Perth

August 28^th

Met with Cllr Kerr at city chambers to discuss my motion and engagement

August 30^th

Meeting with Sw Glasgow adult services lead at home   

 August 31^st

   Guest speaker social work Glasgow service mangers meeting

September
Social care ideas factory launch of Trade School Glasgow

September attended launch of carers champion GCC

September 6^th

Attending Glasgow north east carers to speak to group

September 7^th

Meeting and speaking Glasgow south west carers parents group

September 12^th speaking at Reid Kerr College to health and social care students

September 13^th

Meeting and speaking at Lockerbie carers group

September 17^th meeting Jackie ballie shadow health secretary

September 18^th

Meeting and speaking at Bailleston community care ,carers group

September 20^th gg&c Gartanvel hospital speaking to nurse

Wednesday 26th September 2012

Speaking to NHS staff Via NHS gg&c

place at the Lecture Theatre in the Royal Alexandra Hospital.

Speaking to 100 Doctors /nurses

October 3^rd 

Speaking at Springburn residential care

October 5^th

Speaking at NHS gg&c Event beardmore hotel to around

 150 doctors and nurses

October 8th   

     Kirkintilloch Baptist Church (East Dunbartonshire council)

October 9^th meeting at Caledonian university morning then LTCAS and civil servants in the afternoon

 October 12th

         Bearsden Baptist Church (east Dunbartonshire council)

 October 18^th      Meeting and speaking with carers, carerslink Milgavie

October 19/20/21^st    Tommyontour stand at SNP Conference

Octoberr22nd     Meeting dementia working group Glasgow city council (based on my motion)

October 24^th        meeting lecturer’s Caledonian university to discuss planned paper on life stories collected (morning)

October 24^th        meeting and speaking with carers, Dixon carers group (evening)

October 25^th         meeting and speaking with carers, Pollok Carers (my local carer centre)

October 26th      meeting and speaking with carers Inverclyde carer centre

October 29^th        recording interview about caring for my mum for public broadcast

October 31^st   meeting with PRTFC then Caledonian university reminiscence project meeting then east Renfrew carers (Lisa)

November 1^st Meeting and speaking with carers Glasgow North East

November 4^th comment on STV NEWS AT 6:30PM

November 5th meeting Irene Oldfather at alliance

November 6^th    meeting Con Gillespie NHS gg&c dementia Nursing

November 7^th    public broadcast of interview about caring for my mum and the life stories BBC radio Scotland 2pm

November 8^th   attending rose’s media awards London Tommyontour on

Shortlist for award

November 9th attending rehearsals memories FC Hampden

November 21^st meeting re dementia carer voices (Irene)

November 22^nd Speaking to NHS gg&c charge Nurses Gartanvel 

November 23rd meeting peter Daniels non exec chair NHS gg&C and attending Carer Link AGM (made honorary member)

November 27th   meeting dementia working group at city chambers re my

Motion

November 27^th meeting shadow health secretary at parliament Jackie Bailie

November 28^th meeting and speaking with carers Arbroath carer centre Angus

November 29^th memories FC Hapmden day 1 speaking at launch

November 30^th memories FC Hapmden day 2 then speaking at joint event east Renfrewshire carers and councillors then back to memories FC 

December 3^rd attending Dementia Dialogue event Bellshill (a discussion on Scotland’s dementia strategy)

December 7^th meeting re dementia carer voices (Irene)

December 10^th attending festival of age launches UWS campus Hamilton

December 11^th meeting at Caledonian University to discuss projects 

December 15^th speaking North Ayrshire dementia support services   

December 18^th meeting art project Gartnavel

January 4^rd meeting Glasgow carer champion Dr Christopher Mason at Alliance

January 7^th article on campaign STV local

January 9^th meeting with Samantha flowers re Art project then with Cllr Kerr re Carer engagement

January 10th attending Dementia Dialogue event Paisley (a discussion on Scotland’s dementia strategy)

January 15^th meeting with Emma PRTFC

January 16^th meeting Prof Debbie Tolson UWS

January 17^th AM speaking at RAD directorate Victoria infirmary to ass charge nurses then through to parliament to meet CAB sec for health Alex Neil 1pm also meeting later with Jackson Carlaw (Con) 2:30pm   Jim Hume (Lib Dem) 2pm Jackie Baillie 4pm

January 21^st am Meeting Linda Pollok carers

January 2^{nd pm} meeting Daniel NHS community engagement team

January 22nd meeting Jim Pearson Alzheimer Scotland

January 24^th   attending GNEC meeting

January 30^th meeting re carer engagement film city Chambers  with NHS GG*C CHP

January 31^st meeting art in the Gart   

February 2^nd speaking at healthcare conference Biggar via Jim Hume Lib –dem Healthcare spokesperson

February 3^RD time TBC interview with Sally Magnuson BBC radio Scotland re- Aired

February 5^th meeting Baillieston community carer

February 6^th    meeting carers Alzheimer Scotland south Ayrshire carer group

February 11^th meeting Gail Glasgow south west carers 

February 15^th speaking Caledonian university 3^rd year mental health students

February 15^th TTBC meeting carer engagement film

February 18^th meeting CAB (Morning)

February 18^th meeting Cardonald College re talks

February 19^th speaking South Ayrshire carer’s dementia awareness day

February 20^th       speaking 1st year mental health nursing student’s Caledonian university

February 21st    attending Carers link Milngavie

February 21^st Meeting new carer engagement film ITS OK TO ASK

February 22^nd dementia working group Glasgow city council 2^nd meeting as per my motion passed 

February 26^th stand murryfield via Prof June Andrews

February 26^th meeting Prof Debbie Tolson re book

March 2^nd attending dementia dialogue event

March 4^th meeting care inspectorate

March 5^th speaking Cardonald College

March 5^th speaking Sothern general hospital

March 7^th     attending steering group Art in the Gart

March 8^th       conference at City Chambers NHS  GG*C  caring for older people

March 11^th speaking Cardonald College

March 12^th speaking Caledonian University

March 13^th attending Human rights conference GCU

March 14^th    speaking at Lockerbie carer’s dementia group

March 15^th   speaking Ayr College mental health students

March 2oth     members debate Scottish Parliament dementia carer voices 

March21st attending with stand SDRCN Conference Stirling

March 22nd speaking at SDRCN Conference Stirling also having stand

March 26th   filming “its OK to ask”

March 27th   filming “it’s OK to ask 

March 28th speaking Reid Kerr College 

April 1^st re –airing BBC interview with sally Magnusson

March / April          Filming “its ok to ask “ a new carer engagement film with NHSgg&c –CHP

March 3^rd                    Attending GCU healthcare event

April 3^rd                           Filming interview NHSgg&c Community Engagement team -a case study caring for mum

April 4^th                       Attending Speaking at event N/Ayrshire Dementia  support services

April 9^th 16^th 23^rd 30^th      speaking to staff Southern General Hospital

April 10^th                      meeting mental Health civil servants office  

April 12th                     meeting David Roxburgh Ayr

April 19th   morning        Speaking Alzheimer Show London

April 19th afternoon      Speaking Camden town hall dementia awareness event via Mayor Camden

April   20^th                       speaking at labour party conference Via Jackie Baillie 

April 22^nd                       meeting Con Gillespie office NHS head nursing

April 24^th                           life changes trust launch

May 1^st                           Alliance Conference Perth hosting Dementia Carer Voices workshop

May 2^nd                             Speaking attending carers strategy event N/ Ayrshire council

May 3^rd                             final filming “its ok to ask “  NHSGG&C

May 7^th                           speaking Reid Kerr College morning

May 7^th                           Meeting Julie Christie afternoon   

June 13^th                            Speaking Aberdeenshire carers

 On-Going Projects 

Academic/ educational  paper /              with a leading university on the life stories

Carer engagement film                  working title (its ok to ask)  

Glasgow city council dementia working group based on my motion passed last February

Talks

I have many talks lined up across the NHS and universities based on caring for my mum and the life stories

You can help make all of the above all they can be by sharing you’re story, thoughts, opinions or experiences good or bad at tommy@i-woz-there.com