Blog/Twitter/Facebook
My blog gets 9500 hits per month
sitting on 101, 000, views at moment
And I have 2100 twitter followers
from around, a significant number of them from Councils and Care providers. I The story of my campaign, my film and blog is
now on 30 sites across the world.
I have had articles in most
nation newspapers and have received hundreds of life stories to date
16th Feb 2012
I spoke at the Council meeting in
Glasgow City Chambers and was present when they approved a motion for a Cross
Party Dementia and Carers Group.
MOTION
Council recognises the
inspirational efforts of Tommy Whitelaw in raising awareness of the issues
effecting the carers and families of people suffering from Dementia through his
“Tommy on Tour” campaign
Council agrees to set-up a Cross
Party Working Group to engage with carers and to ensure that the services
provided to carers are appropriate to the needs of the carers and those
suffering from Dementia and that the Working Group’s findings be presented by
Council to the Scottish Government.
Moved by
Councillor John Flanagan
Seconded by
Councillor David McDonald
I have been invited to be the
Carers Representative on this group.
This will be formed after the local elections and there will be a
representative from each party, Head of Social Work, Alzheimer Scotland and the
North Dementia Forum.
17th Feb 2012
Meeting with Social Work and Adult
Services. I continue to be encouraged by
their interest in my campaign and the discussions this generates about the
people concerned. They are looking at a
way of setting up opportunities for me to talk within their departments. They are keen to take this further.
20th Feb 2012
I was the guest speaker at a
coffee morning hosted by the Age Concern Dementia Centre and East Renfrewshire
Carers. The audience included carers and
Councillors and people who worked within the community of Eastwood i.e. Housing and community service providers.
27th Feb 2012
I met with Daniel Connelly who is
the NHS Community Engagement Manager for Glasgow. This meeting generated another talk to the
heads of various departments within the NHS.
I will give more detail of this later in the report.
26th Feb 2012
I met with Peter Daniels who is
Non-executive vice Chair of Greater Glasgow Health Board. Following this meeting Peter asked me to send
him an outline of how we can work together to promote Dementia and Caring
awareness within the areas he covers. I
continue to work on this and he will arrange a board meeting for him to discuss
this with me.
28th Feb 2012
I was invited to speak at the
South Ayrshire Carers Centre to give a talk on my campaign. This should have
been a group of carers and community workers however I had to cancel this the
day before as I did not have enough money that week to take this journey. I found this really upsetting but thankfully
they are trying to rearrange the date.
28th Feb 2012
I was a guest on the Kaye Adams
show on BBC Radio Scotland. This resulted
in an unusually high response from the public in the number of callers who
phoned in to give their support. I had a
call from the producers and we are discussing an hour long programme on the
impact of being a carer has across society.
29th Feb 2012
I spoke at Carrgomm Forum in
Cardonald. This was an important moment
for me as this is the place where I gave my first talk on my campaign. This was the result of me knocking on their
door one day as their office is in the community where I live. This has resulted in great friendships, great
support and epitomises the belief I have in my campaign and the importance of
getting out and speaking from my heart to the people of Glasgow and the broader
communities. Irene who works for
Carrgomm has become a friend who has her own personal experience and has shared
this in a letter to me. She accompanied
me to Parliament in November when I handed the first letters to you.
30th Feb 2012
I had a second meeting with
Daniel Connelly, NHS Community Engagement Manager, Glasgow NHS to discuss the
up and coming presentation to the heads of department.
1st March 2012
I was invited
to speak to 50 social care students and 30 social media students at the Glasgow
City College. This has resulted in
students following my journey through Facebook and asking how they can help and
get involved but more importantly for me, 3 parents contacted me to tell me how
I had inspired their children in their learning and future work within the care
sector. I am so proud of this. Please see the reaction from their lecturers
below.
3rd
March 2012
Today I spoke at St Margaret’s Hospice to 80 palliative
care practitioners. This has resulted in
great feedback and invitations to more talks including an event for 45 district
nurses which has been set up specifically for me to talk about caring for my
Mum with Dementia. Christine Hamill,
Head of District nurses has organised this for May 2nd based on the
talk I gave today.
5th March 2012
This was my second meeting with
the Care Inspectorate who are using my letters as part of their training. They have anonymised these letters and they
will be used to give a better understanding of the lives of carers. This is exactly what my vision was when I began
this campaign. David Cummings and I will
host a meeting for carers to have an open discussion on what it means to be a
carer for a loved one.
6th March 2012
Council Maureen Child contacted
me to congratulate me on my Motion at Glasgow City Council and on my wider
campaign. We met at Edinburgh City
Council in early February and my motion was passed on 6th March.
Councillor Child had submitted the following motion in terms of
Standing Order 28:
“Committee recognises the
inspirational efforts of Tommy Whitelaw in raising awareness of the issues
effecting the carers and families of people suffering from Dementia through his
“Tommy on Tour” campaign, supported by Alzheimer’s Scotland.
Committee therefore agrees to
set-up a Cross Party Working Group to engage with carers and to ensure that the
services provided to carers are appropriate to the needs of the carers and
those suffering from Dementia.”
Decision
1)
To recognise the inspirational efforts of
Tommy Whitelaw in raising awareness of the issues affecting the carers and
families of people suffering from dementia through his “Tommy on Tour”
campaign,
2)
To ask the Director of Health and Social
Care to report back on the issues of dementia to the next meeting of the
Committee.
We will revisit this after the
local elections in May as with Glasgow.
March 9th 2012.
I was invited to Carers Link in
Milngavie this being my third visit to them including
their AGM. I met with carers and people
working within the local community and this resulted in me receiving more
letters. Alex from this group was also
at Parliament in November to support me.
March 10th 2012
On this day I attended the SNP
conference. This was the first political
conference I had attended and I enjoyed the experience and I would like to
extend my gratitude to the Deputy First Minister for taking the time on such an
important day in her diary to invite a son, carer and awareness campaigner for
a half hour coffee and an open and honest discussion about the life I and many
others live as carers and about my hopes for the future.
March 13th 2012
On this day I gave a presentation
to the Acute Operating Division’s Patient Focus and Public involvement steering
group. The audience was 18 heads of
departments within the NHS. This has
resulted in my film being available on NHS websites under “A Carers
Experience.” and there is a planned tour of talks within the departments who
were represented. This will be known as
“Tommy’s Journey – A Carers Experience.”
I could not have wished for more than to be given the chance to speak as
a son and carer about my life and the lives of the people who contact me on a
daily basis to people who are in a position to make a difference.
March 15th 2012
Today I returned to Glasgow North
East Carers to meet with family carers who attend this group and to update them
on the progress of my campaign. 2 people
from this group came to Parliament with me in November.
March 27th 2012
Dementia through Art. I put a message on my blog looking for Art
students to help me raise awareness of Dementia by representing the words in
the letters through the medium of Art.
The response to this was amazing and resulted in me meeting with Art
students from Glasgow School of Art who are keen and passionate about this
project – if they can find funding. I
believe an exhibition of art and the awareness and information this could bring
would generate a great joint working project for organisations who support
people with dementia and/or their carers.
My vision is that providers would come along to this day and give
information to people who are looking for support to try to reach the wider
public and bring more understanding.
March 30th 2012
Follow up meeting with Daniel
Connelly, NHS community engagement team for further exploration into how we can
work together.
4th April 2012
Baillieston Carers invited me
back to their group to update them on the progress of my campaign. Again this was attended by members of the
local community and David who runs the group and Amanda who works there but
also sent a letter accompanied me to Parliament in November.
5th April 2012
I was a Guest speaker at Renfrew
Carers Support group. This was attended
by Carers, people from the local community and Brian Lawson, SNP leader of
Renfrewshire Council who came to the meeting to spend an hour speaking with me
and joined in with the group discussions – something I would like to see more
of. He met people who were facing
struggles and I commend him for arranging to look at some individual families
who are desperately in need of urgent help.
10th April 2012
I was a guest on good morning
Scotland BBC radio and interviewed for BBC
Reporting Scotland to comment on
the dementia champions announced by the government
13th April 2012
Glasgow City College had the
first meeting with students and lecturers who I had addressed earlier in the
month to work on the up and coming project – Dementia and Care through the eyes of social care students. I will attend their classes twice a month to
advice them on the life of a carer and to share some information I have
gathered during my campaign. When
finalised, I would like to give this project to you, without prejudice, as I
find this idea motivating and a hopeful step for the future. I believe that these students will benefit
from the real life experiences and if this project is a success I would like
this to be a template for such educational experiences throughout Scotland.
April 19th 2012
I was invited to st Andrews house
in Edinburgh by David berry who works on the dementia strategy, we had a
meeting to discuss my campaign and how we can move things forward and keep
dementia awareness a priority in my life and to a wider public
APRIL 24TH 2012
Daily record article updating on
my campaign
April 25th
I was a guest speaker at the care
road show concert hall Glasgow
April 26th 2012
Article in the sun
April 27th
Attending Glasgow City College
dementia awareness event based on my campaign ,along with discussing future
projects
2nd May 2012
I was guest speaker to 45
District Nurses at Eastbank Health Promotion Centre.
CITY
WIDE PALLIATIVE RESOURCES NURSES - "Dementia: Put Yourself In Their Shoes” Wednesday 2 May
2012
May 8th
Filmed for Scotland tonight
9th May 2012
Morning I was guest speaker at
the LTCA launch of their new Carers Involvement group.
9TH May
Afternoon meeting with Deputy First Minister
Met with DFM and civil servants
from St Andrews house
May 10th
3 minute video blog and story
about caring and campaign up on Stv
local web site
May 10th
Filmed interview for Scotland tonight
May 11th
Met with social works Glasgow Stephen Fitzpatrick and Ann Cummings
Discussed future talk to staff
and students
August
May 15th
Guest on Scotland tonight
May 18th
Jeanette and kens Story featured
on news all across UK
Jeanette sent me a letter we met
and I set up coverage
MAY 25TH
Meeting with councillor Kerr and Stephen Fitzpatrick head of adult
services to start work on motion I had passed in February should be July Ann
Cummings from social work Glasgow will lead this group
MAY28TH
Speaking to NHS Glasgow board
member via peter Daniels non exec vice chairman to
JUNE 1ST
Meeting with Susan SNP councillor
for langside
Susan is the social care
spokesperson for SNP Glasgow city council
June 5th
Guest speaker to staff and
families prince and princess of Wales’s hospice
June 8th
Attending carers engagement
meeting set up by SW NHS Glasgow
Then meeting with Simon hodgeson
director carer Scotland
June 15th
Meeting at Garnavel hospital to
discuss dementia through Art permanent exhibition at hospital older people wards
corridors
With tom MacKay and Jill Carson with
tom MacKay
June 18th
Tommyontour 3 minute video diary
on Stv local
June 19th
Speaking at memory café via north Ayrshire council
Bridgend Community Center, Stoneyholm Road,
Kilbirnie KA25 7DJ.
2:30pm
June 20th
Meeting
con Gillespie at home to discuss talks with NHS
Now
working on future talks
June 20th
Tommy on tour film and story now on Ayrshire
council website
June 21st
Speaking at PRTFC South Ayrshire carers
June 26th
Tommyontour
care inspectorate meets the carers’ event
July 8th
Report on my campaign published
by social work Glasgow
July 9th
Meeting dementia strategy group
Glasgow North West sector board
room Garnavel hospital
July 13th
Meeting mental health team from
St Andrews house
To update on campaign and discuss
future work
July 16th
Attending Glasgow south west
carers talk with councillor Kerr
July 17th
Attending Glasgow south west
July 20th
Meeting social work Glasgow leads
and councillor Kerr
Speaking at social work Glasgow
managers meeting
July23rd
Meeting team from Stirling University
(via professor June Andrews)
To discuss ways of doing projects together
August
Gave presentation to dementia
strategy team at Garnavel hospital NHS gg&C
AUGUST 9TH
SPOKE AT Ailsa day hospital in
Ayr
August 22nd
Deputy
first minister visits my mum at home
August 24th
Met
with dementia consultants
Con
Gillespie Sandra shields NHS gg&c
Augusts 27th
Attended
launch of BletherBox dementia on-line forum in Perth
August 28th
Met
with Cllr Kerr at city chambers to discuss my motion and engagement
August 30th
Meeting with Sw Glasgow adult services lead at home
August 31st
Guest speaker social work Glasgow service
mangers meeting
September
Social care ideas factory launch of Trade School Glasgow
Social care ideas factory launch of Trade School Glasgow
September attended launch of carers champion GCC
September
6th
Attending Glasgow north east carers to speak to
group
September
7th
Meeting and speaking Glasgow south west carers parents
group
September
12th speaking at
Reid Kerr College to health and social care students
September
13th
Meeting and speaking at Lockerbie carers group
September
17th meeting
Jackie ballie shadow health secretary
September
18th
Meeting and speaking at Bailleston community care
,carers group
September
20th gg&c Gartanvel
hospital speaking to nurse
Wednesday
26th September 2012
Speaking
to NHS staff Via NHS
gg&c
place at the Lecture Theatre in the Royal Alexandra Hospital.
Speaking to
100 Doctors /nurses
October 3rd
Speaking
at Springburn residential care
October 5th
Speaking
at NHS gg&c Event beardmore hotel to around
150 doctors and nurses
October 8th
Kirkintilloch Baptist Church (East
Dunbartonshire council)
October
9th meeting at Caledonian university morning then LTCAS and civil
servants in the afternoon
October
12th
Bearsden Baptist Church (east
Dunbartonshire council)
October 18th Meeting and speaking with carers, carerslink Milgavie
October
19/20/21st Tommyontour
stand at SNP Conference
Octoberr22nd Meeting dementia
working group Glasgow city council (based on my motion)
October
24th
meeting lecturer’s Caledonian
university to discuss planned paper on life stories collected (morning)
October
24th
meeting and speaking with carers,
Dixon carers group (evening)
October
25th
meeting and speaking with
carers, Pollok Carers (my local carer centre)
October
26th
meeting and speaking with carers Inverclyde carer
centre
October
29th recording
interview about caring for my mum for public broadcast
October 31st meeting
with PRTFC then Caledonian
university reminiscence project meeting then east Renfrew carers (Lisa)
November
1st Meeting and speaking
with carers Glasgow North East
November 4th comment on STV NEWS AT 6:30PM
November 5th meeting Irene Oldfather at alliance
November 6th meeting
Con Gillespie NHS gg&c dementia Nursing
November
7th
public broadcast of interview about caring for my mum and the
life stories BBC radio Scotland 2pm
November
8th attending
rose’s media awards London Tommyontour on
Shortlist
for award
November
9th attending
rehearsals memories FC Hampden
November
21st meeting re dementia carer voices (Irene)
November
22nd Speaking to NHS gg&c charge Nurses Gartanvel
November
23rd meeting
peter Daniels non exec chair NHS gg&C and attending Carer Link AGM (made
honorary member)
November
27th meeting dementia working group at city
chambers re my
Motion
November
27th meeting shadow health secretary at parliament Jackie Bailie
November
28th meeting and speaking
with carers Arbroath carer centre Angus
November 29th memories FC Hapmden day 1 speaking at launch
November 30th memories FC Hapmden day 2 then speaking at joint event
east Renfrewshire carers and councillors then back to memories FC
December 3rd attending Dementia Dialogue event Bellshill (a
discussion on Scotland’s dementia strategy)
December 7th meeting re dementia carer
voices (Irene)
December 10th attending festival of age launches UWS campus Hamilton
December 11th meeting at Caledonian University to discuss
projects
December 15th speaking North Ayrshire dementia support
services
December 18th meeting art project Gartnavel
January 4rd meeting Glasgow carer champion Dr Christopher Mason at
Alliance
January 7th article on campaign STV local
January 9th meeting with Samantha flowers re Art
project then with Cllr Kerr re Carer engagement
January 10th attending Dementia Dialogue event Paisley (a
discussion on Scotland’s dementia strategy)
January 15th meeting with Emma PRTFC
January 16th meeting Prof Debbie Tolson UWS
January 17th AM speaking at RAD directorate Victoria infirmary to
ass charge nurses then through to parliament to meet CAB sec for health Alex
Neil 1pm also meeting later with Jackson Carlaw (Con) 2:30pm Jim Hume (Lib Dem) 2pm Jackie Baillie 4pm
January
21st am Meeting Linda
Pollok carers
January
2nd pm meeting Daniel NHS
community engagement team
January
22nd meeting Jim Pearson Alzheimer
Scotland
January 24th attending
GNEC meeting
January
30th meeting re carer
engagement film city Chambers with NHS
GG*C CHP
January
31st meeting art in the
Gart
February
2nd speaking at healthcare
conference Biggar via Jim Hume Lib –dem Healthcare spokesperson
February
3RD time TBC interview
with Sally Magnuson BBC radio Scotland re- Aired
February
5th meeting Baillieston community carer
February
6th meeting carers
Alzheimer Scotland south Ayrshire carer group
February 11th meeting Gail Glasgow south west carers
February 15th speaking
Caledonian university 3rd year mental health students
February 15th TTBC meeting carer engagement film
February 18th meeting CAB (Morning)
February 18th meeting Cardonald College re talks
February 19th speaking South
Ayrshire carer’s dementia awareness day
February 20th speaking 1st year mental health nursing
student’s Caledonian university
February 21st attending Carers link Milngavie
February 21st
Meeting new carer engagement film ITS OK TO ASK
February 22nd dementia
working group Glasgow city council 2nd meeting as per my motion
passed
February 26th stand murryfield via Prof June Andrews
February 26th meeting Prof Debbie Tolson re book
March 2nd attending dementia dialogue event
March 4th meeting care inspectorate
March 5th speaking Cardonald College
March 5th speaking Sothern general hospital
March 7th attending
steering group Art in the Gart
March 8th conference
at City Chambers NHS GG*C caring for older people
March 11th speaking Cardonald College
March 12th speaking Caledonian University
March 13th attending Human rights conference
GCU
March 14th speaking at
Lockerbie carer’s dementia group
March 15th speaking Ayr College mental health students
March 2oth members debate Scottish Parliament dementia
carer voices
March21st attending with stand SDRCN
Conference Stirling
March 22nd speaking at SDRCN Conference
Stirling also having stand
March 26th
filming “its OK to ask”
March 27th
filming “it’s OK to ask
March 28th
speaking Reid Kerr College
April 1st re –airing BBC
interview with sally Magnusson
March / April
Filming “its ok to ask “
a new carer engagement film with NHSgg&c –CHP
March 3rd
Attending GCU healthcare
event
April 3rd Filming
interview NHSgg&c Community Engagement team -a case study caring for mum
April 4th Attending
Speaking at event N/Ayrshire Dementia support services
April 9th 16th 23rd 30th
speaking to staff Southern General Hospital
April 10th meeting mental Health
civil servants office
April 12th meeting David Roxburgh Ayr
April
19th morning
Speaking Alzheimer Show London
April 19th afternoon
Speaking Camden town hall dementia awareness event via Mayor
Camden
April 20th
speaking at labour party conference Via Jackie
Baillie
April 22nd meeting Con Gillespie
office NHS head nursing
April 24th life changes trust
launch
May 1st
Alliance Conference Perth hosting Dementia Carer Voices workshop
May 2nd Speaking
attending carers strategy event N/ Ayrshire council
May 3rd final filming “its
ok to ask “ NHSGG&C
May 7th speaking Reid Kerr College
morning
May 7th Meeting Julie Christie
afternoon
June 13th Speaking
Aberdeenshire carers
On-Going Projects
Academic/ educational paper / with a leading university on the life stories
Carer engagement
film
working title (its ok to ask)
Glasgow city council dementia working
group based on my motion passed last February
Talks
I have many talks lined up across the NHS and
universities based on caring for my mum and the life stories
You can help make all of the above all they can be
by sharing you’re story, thoughts, opinions or experiences good or bad
at tommy@i-woz-there.com
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