Hi
A big thank you to the
Scottish health council for mentioning my blog about caring for my mum Joan in their e
participation report just published
You can view the full report
at the link bottom of the page
Tommy
The
rise of the e-patient
Use of
the internet for finding health information, peer support and also
blogging
about health conditions has given rise to the term e-patients (as well
as
e-carers). This term is used to describe patients (and carers) who use web
tools
to help manage their health conditions. These patients take a very active
part
in their healthcare which has also led to a ‘participatory medicine’ model
of
healthcare, described by the Society for Participatory Medicine24 as:
“… a
model of cooperative health care that seeks to achieve active
involvement
by patients, professionals, caregivers, and others across the
continuum
of care on all issues related to an individual's health.”
Examples
of such e-patients and e-carers include Michael Seres who was
opening
speaker at the Scottish Health Council’s social media event in
February
2013. After coping with Crohn's Disease and
then intestinal failure
Michael
became the 11th person to undergo a small bowel transplant at the
Churchill
Hospital in Oxford and blogs and tweets about his journey as a
bowel
transplant patient25.
Tommy Whitelaw also blogs and tweets about his
experience
as a carer for his mother who had dementia. His blog post
‘Tommy
on Tour’26 raises
awareness of dementia with a wide range of carers,
dementia patients and healthcare
professionals.
full report
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